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Studies have shown that Veterans are 1.5 to 2 times as likely as civilians to be diagnosed with ALS. Veterans who are diagnosed with ALS and served in the U.S. military for 90 or more consecutive days of active duty and have been honorably discharged are eligible for disability compensation and healthcare through the VA.
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Veterans with ALS who did not serve 90 or more days of active duty, served in the military reserves, or had an other-than-honorable discharge are encouraged to contact their local VA ALS Coordinator to discuss their eligibility for benefits and care.
What are VA benefits?
Eligible Veterans can receive critical benefits such as:
- Disability Compensation
- Access to VA ALS Clinics
- Copayment Exempt Healthcare
- Home Health Care Benefits
- Caregiver Support and Caregiver Stipend Benefits
- Home Modification Benefits
- CHAMPVA Benefits
- Durable Medical Equipment and Assistive Technology
- Automobile Grant
- Recreation Therapy and Adaptive Sports
How do I apply for service-connected benefits?
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To apply for your service-connected benefits, we strongly recommend reaching out to a Veterans Service Organization like the Paralyzed Veterans of America (PVA). Navigating the VA system on your own can be a confusing and frustrating process. PVA can be your advocate—they will explain your benefits, answer questions, give you tips, help you with paperwork, and expedite your application, which may take 90 days or so to get approved.
While waiting for your benefits, you should get connected with a local ALS organization. You can receive support from the VA and your local ALS organization at the same time. In addition, local organizations can provide much-needed support to your loved ones during this process. |
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Can I attend an ALS clinic before getting approved?
Yes, it is very important to begin attending an ALS clinic as soon as possible after your diagnosis. Even if you have not yet been approved for service-connected benefits, you can request a referral to VA ALS clinics and services as long as you have a confirmed ALS diagnosis and supporting documentation. There is an established process that can get you the care you need while you are waiting for approval. A VA staff person, often a social worker or nurse care coordinator, should be able to guide you through the process and discuss your options.
Can I attend a non-VA ALS clinic?
Yes. You can choose to go to a community ALS clinic, though most veterans eventually make the transition to the VA because all their care and benefits can be coordinated in one place. If you choose to attend an ALS clinic outside of the VA, you will need to use other insurance to pay for your care. If there is no VA ALS clinic in your area, your local VA may make a referral and pay for you to attend a community ALS clinic.
Resources Created by Veterans Living with ALS
The Veterans Team at I AM ALS has created the following documents to help you navigate the VA and your ALS journey:
I AM ALS also hosts a monthly virtual support group for veterans.
If I was diagnosed at a non-VA clinic, can I attend both clinics?
It’s best to narrow your ALS care down to one clinic. Most Veterans would agree that the VA ALS clinics provide comprehensive and streamlined care. Given there is a shortage of ALS clinics in the private sector, it’s best not to use two clinic slots simultaneously once you have decided on which ALS clinic works best for you.
Can I receive VA benefits and Medicare benefits?
Yes. In addition to your VA benefits, you can also qualify for and receive Medicare benefits—as long as you are eligible. Medicare can help you pay for services outside the VA system that the VA might not cover, such as visits to non-VA ALS clinics or other medical professionals. If you don’t qualify for Medicare, you will still receive full coverage within the VA system.
Can I receive VA benefits and Medicaid benefits?
When you are diagnosed with ALS and start receiving monetary disability compensation from the VA, you will no longer qualify for Medicaid benefits. If you also have Medicare, that will continue to be your primary insurance and the VA will become secondary.
Can I receive VA benefits and Social Security benefits?
Yes. Veterans can receive both VA Disability Compensation and Social Security Disability or Social Security Retirement benefits.
Interview with Jeremy Van TressJeremy is a US Army veteran who earned a PhD in social work after his ALS diagnosis. In his interview with Your ALS Guide, Jeremy tells his story, shares how he's coped, and offers advice. See interview
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What else should I know?
Most of the information on this website will also pertain to you. We encourage you to explore Your ALS Guide to learn about ALS, self-care, medical decisions, respiratory support, and more. If you have been diagnosed in the past few months, you can start with our Newly Diagnosed Guide.
