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The ALS community is strong. Caring professionals, organizations, and individuals can help guide you and your family through the journey. You do not have to figure everything out on your own.
Reach out and ask questions. Everything is voluntary and most services are free. |
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The ALS Association
The ALS Association (ALSA) is the only nonprofit organization in the United States that is solely focused on finding a cure for ALS and supporting families affected by the disease. The ALS Association leads the fight against ALS with the largest research programs throughout the world.
Connecting with your local chapter is the most helpful step you and your family can take. Across the country, The ALS Association’s local chapters provide a wide array of FREE support services and resources for families affected by ALS. By registering with your local chapter, you can:
Local chapters provide free services for anyone diagnosed with ALS, PMA (progressive muscular atrophy), or PLS (primary lateral sclerosis).
Once you are diagnosed, you must register with your local chapter to receive services. You can register online or over the phone, which usually takes 10 to 20 minutes. You or a family member may do this. Once registered, you can talk with your care services coordinator to get started.
Connecting with your local chapter is the most helpful step you and your family can take. Across the country, The ALS Association’s local chapters provide a wide array of FREE support services and resources for families affected by ALS. By registering with your local chapter, you can:
- Receive one-on-one advice and support
- Meet with a care services coordinator in your home
- Borrow equipment that can save you thousands of dollars
- Meet with a multidisciplinary medical team of ALS specialists on an ongoing basis
- Connect with a network of families in your area who are experiencing similar challenges
Local chapters provide free services for anyone diagnosed with ALS, PMA (progressive muscular atrophy), or PLS (primary lateral sclerosis).
Once you are diagnosed, you must register with your local chapter to receive services. You can register online or over the phone, which usually takes 10 to 20 minutes. You or a family member may do this. Once registered, you can talk with your care services coordinator to get started.
Muscular Dystrophy Association (MDA)
The Muscular Dystrophy Association (MDA) conducts research and provides support for families affected by muscular dystrophy, ALS, and related muscle-debilitating diseases. MDA has ALS Care Centers, an equipment loan program, support groups (some of which are ALS specific), and educational materials.
MDA has many great resources, including: Everyday Life with ALS: A Practical Guide, MDA ALS Caregiver’s Guide, and information on research and clinical trials.
MDA has many great resources, including: Everyday Life with ALS: A Practical Guide, MDA ALS Caregiver’s Guide, and information on research and clinical trials.
ALS Clinics
Once you have been diagnosed, it is extremely important to attend an ALS clinic and meet with a multidisciplinary medical team that specializes in ALS.
Studies have shown that attending an ALS clinic on a regular basis can extend your life by one year or more, in addition to extending your physical capabilities.
Studies have shown that attending an ALS clinic on a regular basis can extend your life by one year or more, in addition to extending your physical capabilities.
