“Your website is fantastic! We include your flyers in our informational binder we give to new patients. We’re excited to get the word out about this wonderful site!”
— Robyn Reince, RN, Kaiser San Leandro Neurology ALS
— Robyn Reince, RN, Kaiser San Leandro Neurology ALS
“Your Newly Diagnosed Guide looks fabulous! I really love the layout and how thorough this is. Thank you for making and sharing this.”
— James D. Berry, MD, Chief, Massachusetts General Hospital, ALS Division
— James D. Berry, MD, Chief, Massachusetts General Hospital, ALS Division
“I appreciate everything that Your ALS Guide does. You do incredible work to keep people informed and aware. I've shared your resources with many clients. You've been a huge help to a lot of people. Thank you.”
— Jeremy Van Tress, Social Worker Living with ALS
— Jeremy Van Tress, Social Worker Living with ALS
“I love Your ALS Guide because it's one of the few places that people on the ALS journey can go where they aren't asked to do or give anything—other than find what they need. It's a great resource where caregivers, patients, families, and friends can learn what’s important.”
— Allison Bulat, ALS Caregiver and Patient Advocate
— Allison Bulat, ALS Caregiver and Patient Advocate
“Your ALS Guide is wonderful. I’m grateful to have a resource to provide to our patients that has so much beneficial information!!”
— Christina Vargas, MS, NCC, Care Services Coordinator, ALS Association DC/MD/VA Chapter
— Christina Vargas, MS, NCC, Care Services Coordinator, ALS Association DC/MD/VA Chapter
“I very much enjoy your website and talk about it often when I do home visits. Thank you so much for creating an amazing resource!”
— Susan Pennock, Care Service Coordinator, ALS Association Oregon and SW WA Chapter
— Susan Pennock, Care Service Coordinator, ALS Association Oregon and SW WA Chapter
“What an AMAZING resource. We use and reference your site frequently.”
— Tammy Stalzer, Executive Director, ALS in the Heartland
— Tammy Stalzer, Executive Director, ALS in the Heartland
“I love this site! You've done a terrific job of gathering great information for people living with ALS and their caregivers. Thanks for all you all do.”
— Karen Duffy, Community Outreach Coordinator, Emory ALS Center
— Karen Duffy, Community Outreach Coordinator, Emory ALS Center
“Your ALS Guide continues to set the bar high—you have fantastic content.Thank you for all that you do to help the ALS community. You are doing an amazing job and we are fortunate that there is a place where we can send PALS, CALS, and families (and ourselves) for resources.”
— Jamey Piggott, Executive Director, ALS Hope Foundation
— Jamey Piggott, Executive Director, ALS Hope Foundation
“I love your site. Thank you for all you have done and continue to do.”
— Doug Clough, person living with ALS
— Doug Clough, person living with ALS
“I found a flyer for your website left behind on a chair in a neurologist's office and have been on your site ever since. It is the best resource I have found in years of caring for a family member struggling with this terrible disease. Just wanted to say THANK YOU for your most amazing gift of information and kindness.”
— R. Edwards, family member
— R. Edwards, family member
“I want to thank you for this superb guide for managing ALS. I so far have a slowly progressing disease, but the information you provide offers such peace of mind for preparing for the future.”
— Jennifer, person living with ALS
— Jennifer, person living with ALS
“You have created a truly excellent resource! The site is thorough and helpful without being overwhelming or intimidating. The large font size and the amount of information is very appealing. I will certainly direct those newly (or previously) diagnosed with ALS to use it.”
— Todd, person living with ALS
— Todd, person living with ALS
