 Myna with her brother, Tom, in 2011
Myna Stroth, a retired fourth grade teacher, was diagnosed with ALS in 2013.
Her family mobilized to support her the best they could. Yet despite amazing help from The ALS Association, Mayo Clinic, an assisted living facility, and eventually hospice, everyone scrambled to keep up with her rapidly changing needs. After Myna passed away in 2015, her brother, Tom, and nephew, David, started talking about how they could share what they had learned with families facing similar challenges. Months later, Tom reached out to Kim Hughes, The ALS Association Arizona Chapter Care Services Director who had worked closely with Myna. Kim mentioned that she was leaving The ALS Association after 12 years. She had such a wealth of knowledge and expertise that colleagues suggested she write a book. Tom and David approached Kim in 2016 about teaming up to create an online resource that would help families navigate the challenges associated with ALS. After one year of brainstorming, strategizing, writing, and editing, they launched this website. Your ALS Guide strives to be a practical, friendly, and trusted resource for people with ALS, caregivers, family, friends, healthcare professionals, and everyone else who works on behalf of the ALS community. |
