Your ALS Guide
  • Home
  • Get Started
    • Learn About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • Paid Caregivers
    • ALS Professionals
  • Planning
    • Health Insurance
    • Employment
    • Self-Care
    • Medical Decisions
    • Research and Clinical Trials
    • Care Options
    • Advance Directives
    • Legacy
    • Transportation
    • Home Modifications
    • Travel
  • Guides
    • Home & Daily Living
    • Newly Diagnosed
    • Respiratory
    • Power Wheelchairs
    • Communication
    • Braces
  • Equipment
    • ALS Equipment Guide
    • Mobility
    • Transfer Devices
    • Ramps and Lifts
    • Toileting Devices
    • Tub and Shower Devices
    • Braces and Splints
    • Grooming Devices
    • Dressing Aids
    • Eating Devices
    • Drinking Devices
    • Sleeping and Beds
    • ALS Smart Home Devices
    • Leisure Devices
    • ALS Equipment Loan Closets
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Newsletter
    • Fliers
    • Get Involved
    • Resource List
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Testimonials
    • Content Licensing
    • Contact Us
  • Home
  • Get Started
    • Learn About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • Paid Caregivers
    • ALS Professionals
  • Planning
    • Health Insurance
    • Employment
    • Self-Care
    • Medical Decisions
    • Research and Clinical Trials
    • Care Options
    • Advance Directives
    • Legacy
    • Transportation
    • Home Modifications
    • Travel
  • Guides
    • Home & Daily Living
    • Newly Diagnosed
    • Respiratory
    • Power Wheelchairs
    • Communication
    • Braces
  • Equipment
    • ALS Equipment Guide
    • Mobility
    • Transfer Devices
    • Ramps and Lifts
    • Toileting Devices
    • Tub and Shower Devices
    • Braces and Splints
    • Grooming Devices
    • Dressing Aids
    • Eating Devices
    • Drinking Devices
    • Sleeping and Beds
    • ALS Smart Home Devices
    • Leisure Devices
    • ALS Equipment Loan Closets
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Newsletter
    • Fliers
    • Get Involved
    • Resource List
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Testimonials
    • Content Licensing
    • Contact Us

ALS Clinics


​After you have received an ALS diagnosis, it is very important to connect with and attend an ALS clinic. ​In addition to improving your quality of life, studies have shown that attending an ALS clinic on a regular basis can extend your life by one year or more.

Attending an ALS clinic once every few months means you will have a team of specialists who coordinate your care, make individualized recommendations, and provide ongoing guidance. Your ALS clinic team can help you manage symptoms, recommend medical equipment and assistive devices, educate you about ALS drugs and clinical trials, answer questions between visits, and more.



ALS Clinic Locator

This is the most current and comprehensive directory of ALS Clinics in the U.S. and around the world.
Find a Clinic Near You
Picture

How do ALS clinics work?

After your diagnosis, your ALS doctor’s office will schedule your clinic appointment. If you have been diagnosed by a neurologist who does not specialize in ALS, ask for a referral to an ALS doctor affiliated with a clinic near you.

About once every three months, you will travel to the clinic to meet with a neurologist, nurse, physical therapist, occupational therapist, respiratory therapist, speech language pathologist, social worker, and other professionals. It is always helpful to have a caregiver, family member, or friend accompany you to help take notes and ask questions.

For a few hours, you will stay in the same room while the specialists rotate to visit with you, answer questions, and measure your progress.​

At the end of each visit, your team will discuss your individualized care plan and send you a report with care and equipment recommendations. If you have questions or concerns between your visits, do not hesitate to contact the clinic coordinator.

​It is important that you feel comfortable with every member of your ALS clinic team. If you have any concerns, talk with the clinic coordinator or the representative from your local ALS organization.


Caregiver Support at Clinics

ALS clinic teams understand that primary caregivers need support, too. As a caregiver, you can ask questions, call the clinic coordinator between visits, and request to speak separately with the social worker or other members of the team to discuss personal challenges.

How much does a clinic visit cost?

ALS clinic visits are typically covered by Medicare, Medicaid, and private insurance. If you are concerned about insurance coverage or being able to pay for clinic visits, explain your situation to the clinic coordinator or local ALS organization and ask if financial support is available. Clinics and organizations will try to find a way to make sure that all people living with ALS get the medical care they need.
​

​Military Veterans: Learn about ALS care at the VA

Picture

Sign up for our free newsletter to stay up-to-date on new content, equipment, ALS news, resources, and more.
Subscribe

What if I live far from the nearest clinic?

If at all possible, it is best to get diagnosed by a neurologist who specializes in ALS and then have one or more in-person clinic visits with a team of ALS specialists. This way you can establish a general care plan and have the ability to reach out to your clinic coordinator with questions or concerns. If the clinic offers telemedicine, you may be able to schedule virtual visits with the same medical team.

If you cannot attend a clinic in person, ask your ALS neurologist or local ALS organization if they can recommend a general neurologist or medical team closer to you. Ideally, you will find professionals who are willing to learn about ALS and coordinate with your ALS clinic team.


What if I don’t have transportation?

​If you do not have a way to get to the clinic, ask your local ALS organization and clinic if they have a transportation program that could provide financial assistance. They may also be able to help you identify accessible transportation options in your area. If you are unable to travel to the clinic due to health, safety, or logistical reasons, try to find a medical professional near you who can monitor your health and possibly make home visits. You may also be able to receive guidance from ALS specialists virtually through telemedicine.
SEARCH FOR A LOCAL CLINIC


NEWLY DIAGNOSED GUIDE


THE DIAGNOSIS
Early Symptoms
Diagnosis Process
Second Opinion
Coping with ALS
Sharing the News
NEXT STEPS
​ALS Clinics
Support Services
Health Insurance
Employment
For Veterans
PLANNING AHEAD
​Self-Care
Medical Equipment
Medical Decisions
​Advance Directives
​Living with ALS
LEARN MORE
​About ALS
​Research + Trials
Approved Drugs
ALS Resource List

​For Caregivers


FOR ALS PROFESSIONALS | GUIDE COLLABORATORS | NEWSLETTER
Picture
Picture
Subscribe
LEARN
About ALS
Self-Care
Care Options
Medical Decisions
​Health Insurance
​
Transportation
GUIDES
Newly Diagnosed
Home & Daily Living
Respiratory
Braces
​Power Wheelchairs
Communication
RESOURCES
​ALS Clinics
Support Services
Support Groups
​
​For Caregivers
Print Fliers
​Resource List
ABOUT
​Our Story
Myna's Story
Newsletter
Testimonials
​
Licensing
​Contact Us
Copyright © 2025 Your ALS Guide | All rights reserved | Privacy Policy