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Unlike testing for cancer or many other diseases, there is no one definitive test that can diagnose ALS. Diagnosing ALS involves ruling out other possibilities through a process of elimination. This can be tricky, and people do get misdiagnosed.
Most experts agree that it is a good idea to see a second neurologist to get a second opinion. Because an ALS diagnosis will affect the way you begin to plan for your future, you will want to make sure that you don’t have any doubts about what is causing your symptoms. |
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ALS is a rare disease, and not every neurologist specializes in ALS. It is very important, whenever possible, to find a neurologist in your area who is very familiar with the disease and who diagnoses people with ALS. We recommend using our ALS Clinics Directory to find a neurologist at an ALS clinic near you. Another good way to find a specialist is to contact your local ALS Association chapter or Muscular Dystrophy Association (MDA) office to ask for recommendations.
When you schedule your appointment, explain that you are seeking a second opinion for an ALS diagnosis. This may help get you an earlier appointment. Before your appointment, make sure the neurologist has your initial test results. Write down any questions you have and ask a loved one to accompany you to provide support and help take notes.
If your second diagnosis also indicates that you have ALS, we suggest making an appointment at an ALS clinic and contacting your local ALS Association chapter or MDA office. The sooner you get connected with a team of experts, the more support you will have, and the better your quality of life will be.
When you schedule your appointment, explain that you are seeking a second opinion for an ALS diagnosis. This may help get you an earlier appointment. Before your appointment, make sure the neurologist has your initial test results. Write down any questions you have and ask a loved one to accompany you to provide support and help take notes.
If your second diagnosis also indicates that you have ALS, we suggest making an appointment at an ALS clinic and contacting your local ALS Association chapter or MDA office. The sooner you get connected with a team of experts, the more support you will have, and the better your quality of life will be.
