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ALS support groups provide an excellent opportunity to connect with others who understand what you are experiencing on a daily basis. Support groups should be a safe place for you to share what you are going through and dealing with day-to-day. They can help give you a new perspective on your situation and realize you are not alone.
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Support groups are not for everyone, but we encourage you to attend at least once and see if it is for you. At support groups, you can:
Ask your local ALS organization about in-person and online support groups in your area.
- Ask questions.
- Share tips, tricks, and information.
- Learn about helpful resources.
- Talk about your experience.
- Learn how others cope.
- Develop strategies that can improve your quality of life.
- Hear from guest speakers on topics like mobility, chewing, swallowing, respiratory concerns, and coping strategies.
Ask your local ALS organization about in-person and online support groups in your area.
And here are some virtual options regardless of where you live:
Many people living with ALS and caregivers also find helpful support and advice in ALS-specific Facebook groups.
- Mary Holt-Paolone, MSRN and Mental Health Specialist at the MDA/ALS Center of Hope at Temple University, hosts monthly virtual support groups for caregivers, people living with PLS, and those who have lost a loved one. Learn more.
- The nonprofit organization I AM ALS hosts virtual support groups for people living with ALS, veterans, caregivers, loved ones, and those who have lost a loved one. Learn more.
- ALS Network hosts a variety of free online support groups for specific audiences and topics (caregivers/loved ones, veterans, trach and vent, LGBTQIA+, bereavement, in Spanish, etc). Learn more.
Many people living with ALS and caregivers also find helpful support and advice in ALS-specific Facebook groups.
