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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Research and Clinical Trials
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Testimonials
    • Contact Us

ALS Support Groups


ALS support groups provide an excellent opportunity to connect with others who understand what you are experiencing on a daily basis. Support groups should be a safe place for you to share what you are going through and dealing with day-to-day. They can help give you a new perspective on your situation and realize you are not alone.


Support groups are not for everyone, but we encourage you to attend at least once and see if it is for you. At support groups, you can:
​
  • Ask questions.
  • Share tips, tricks, and information.
  • Learn about helpful resources.
  • Talk about your experience.
  • Learn how others cope.
  • Develop strategies that can improve your quality of life​.
  • Hear from guest speakers on topics like mobility, chewing, swallowing, respiratory concerns, and coping strategies.

Ask your local ALS organization about in-person and online support groups in your area.

And here are two virtual options regardless of where you live:

  • Mary Holt-Paolone, MSRN and Mental Health Specialist at the MDA/ALS Center of Hope at Temple University, hosts monthly virtual support groups for caregivers, people living with PLS, and those who have lost a loved one. Learn more.
  • The nonprofit organization I AM ALS hosts virtual support groups for people living with ALS, veterans, caregivers, loved ones, and those who have lost a loved one. Learn more. 

Many people living with ALS and caregivers also find helpful support and advice in ALS-specific Facebook groups.
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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