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  • Home
  • Get Started
    • Learn About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • Paid Caregivers
    • ALS Professionals
  • Planning
    • Health Insurance
    • Employment
    • Self-Care
    • Medical Decisions
    • Research and Clinical Trials
    • Care Options
    • Advance Directives
    • Legacy
    • Transportation
    • Home Modifications
    • Travel
  • Guides
    • Home & Daily Living
    • Newly Diagnosed
    • Respiratory
    • Power Wheelchairs
    • Communication
    • Braces
  • Equipment
    • ALS Equipment Guide
    • Mobility
    • Transfer Devices
    • Ramps and Lifts
    • Toileting Devices
    • Tub and Shower Devices
    • Braces and Splints
    • Grooming Devices
    • Dressing Aids
    • Eating Devices
    • Drinking Devices
    • Sleeping and Beds
    • ALS Smart Home Devices
    • Leisure Devices
    • ALS Equipment Loan Closets
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Newsletter
    • Fliers
    • Get Involved
    • Resource List
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Testimonials
    • Content Licensing
    • Contact Us

ALS Care Options


Providing care for a person living with ALS can be challenging, especially as the disease progresses. Family caregivers often struggle to care for their loved one while juggling the demands of daily life.

Below are some options for finding additional care and support. 

Home Health Services are short-term skilled nursing and therapy services prescribed by your neurologist that should be covered by insurance. Learn more

Non-Medical Home Care provides assistance with daily activities like bathing, toileting, dressing, and eating. It is not usually covered by insurance. Learn more

Respite Care is any type of short-term caregiving assistance that provides rest and relief for the primary caregiver. You may be able to find some respite care at no cost to you. Learn more

Palliative Care provides a specialized medical team that can help you manage pain and symptoms. It should be covered by insurance. Learn more

Hospice Care provides compassionate care and comfort near the end of life. It can include home visits, medication, counseling, and more. It should be covered by insurance. Learn more

The VA provides extensive service-connected benefits for military veterans diagnosed with ALS, including benefits for personal care. Learn more

Long-term Care Policies

If you purchased a long-term care policy prior to your symptoms and diagnosis—and have been paying your premiums—you should receive financial assistance to help pay for non-medical long-term care. If you have a long-term care provision or rider through your life insurance policy, you should also receive financial assistance with long-term care.
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