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Providing care for a person living with ALS can be challenging, especially as the disease progresses. Family caregivers often struggle to care for their loved one while juggling the demands of daily life.
Below are some options for finding additional care and support. |
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Home Health Services are short-term skilled nursing and therapy services prescribed by your neurologist that should be covered by insurance. Learn more
Non-Medical Home Care provides assistance with daily activities like bathing, toileting, dressing, and eating. It is not usually covered by insurance. Learn more
Respite Care is any type of short-term caregiving assistance that provides rest and relief for the primary caregiver. You may be able to find some respite care at no cost to you. Learn more
Palliative Care provides a specialized medical team that can help you manage pain and symptoms. It should be covered by insurance. Learn more
Hospice Care provides compassionate care and comfort near the end of life. It can include home visits, medication, counseling, and more. It should be covered by insurance. Learn more
The VA provides extensive service-connected benefits for military veterans diagnosed with ALS, including benefits for personal care. Learn more
Non-Medical Home Care provides assistance with daily activities like bathing, toileting, dressing, and eating. It is not usually covered by insurance. Learn more
Respite Care is any type of short-term caregiving assistance that provides rest and relief for the primary caregiver. You may be able to find some respite care at no cost to you. Learn more
Palliative Care provides a specialized medical team that can help you manage pain and symptoms. It should be covered by insurance. Learn more
Hospice Care provides compassionate care and comfort near the end of life. It can include home visits, medication, counseling, and more. It should be covered by insurance. Learn more
The VA provides extensive service-connected benefits for military veterans diagnosed with ALS, including benefits for personal care. Learn more
Long-term Care Policies
If you purchased a long-term care policy prior to your symptoms and diagnosis—and have been paying your premiums—you should receive financial assistance to help pay for non-medical long-term care. If you have a long-term care provision or rider through your life insurance policy, you should also receive financial assistance with long-term care.
