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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Research and Clinical Trials
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Testimonials
    • Contact Us

Respite Care for ALS


Respite care is when family, friends, volunteers, or professional caregivers stay with the person with ALS so the primary caregiver can take much-needed breaks to run errands, exercise, socialize, relax, and recharge.

Caregivers often feel guilty for taking breaks, but taking care of oneself is critical to preventing caregiver burnout and to being a better caregiver for the long run.

Our home care page provides information on coordinating respite care with family and friends and hiring paid caregivers.
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Medicare will not cover respite care unless it's through hospice, though here are some ways you might be able to receive respite care at no cost:
​
  • Ask your local ALS organization if they have a respite program or volunteers who can help.
  • Talk with the social worker at your ALS clinic to find out if there is assistance available through your state or faith-based or charitable organizations.​
  • If you qualify for Medicaid, find out if your state's program covers long-term care services.
  • If you purchased a long-term care policy before your ALS diagnosis, check your policy to find out what is covered.
  • If you are a military veteran, ask the VA about your respite care benefits.
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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