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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • Family & Friends
    • Research & Treatment
    • Common Questions
  • Planning
    • Health Insurance
    • Medical Decisions
    • Care
    • Employment
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • Support Services
    • ALS Clinics
    • Support Groups
    • ALS Registry
    • Support the Cause
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Contact Us

Palliative Care


Palliative care provides specialized medical care for anyone diagnosed with a serious illness. A medical team will work with you to manage pain and symptoms and improve your comfort level.

Palliative care adds an additional layer to your current care. Your palliative doctor will coordinate your care with your neurologist and primary care doctor. A nurse and social worker will check on you periodically.
​
Here are some facts about palliative care:
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  • ​You can begin receiving palliative care any time after your ALS diagnosis.​
  • You can receive palliative care in your home, hospital, nursing home, or other long-term care facilities.
  • During palliative care, you can still take curative treatments (like riluzole), participate in drug trials, and receive durable medical equipment through your insurance.
  • Medicare and private insurance plans should cover all or part of palliative care, just as it would for other medical services. Medicaid benefits will vary by state. Ask what would be covered for you.

Talk with your ALS Association chapter or ALS clinic social worker about palliative care and providers who have experience working with ALS patients. In order to enroll in palliative care, your doctor will need to write you a referral.

Learn more about ALS and palliative care and read answers to frequently asked questions.
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
Family & Friends
​​Research & Treatment
Common Questions

Planning

Health Insurance
Medical Decisions
Care

Employment
Transportation

​Home Modifications
​Travel
​

Equipment

Overview
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

Support Services
ALS Clinics

Support Groups
​
ALS Registry

​Support the Cause
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
​Contact Us

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