Your ALS Guide

  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Research and Clinical Trials
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Testimonials
    • Contact Us
  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Research and Clinical Trials
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Testimonials
    • Contact Us

Palliative Care for ALS


Palliative care provides specialized medical care for anyone diagnosed with a serious illness. A medical team will work with you to manage pain and symptoms and improve your comfort level.

Palliative care adds an additional layer to your current care. Your palliative doctor will coordinate your care with your neurologist and primary care doctor. A nurse and social worker will check on you periodically.
Picture
Here are some facts about palliative care:
​
  • ​You can begin receiving palliative care any time after your ALS diagnosis.​
  • You can receive palliative care in your home, hospital, nursing home, or other long-term care facilities.
  • During palliative care, you can still take curative treatments (like Rilutek® or Radicava®), participate in drug trials, and receive durable medical equipment through your insurance.
  • Medicare and private insurance plans should cover all or part of palliative care, just as it would for other medical services. Medicaid benefits will vary by state. Ask what would be covered for you.

Talk with your local ALS organization or ALS clinic social worker about palliative care and providers who have experience working with ALS patients. In order to enroll in palliative care, your doctor will need to write you a referral.

On the Get Palliative Care website, you can learn more about ALS palliative care and read answers to frequently asked questions.
Picture

Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
Copyright © 2023 Your ALS Guide | All rights reserved | Privacy Policy