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  • Home
  • Get Started
    • Learn About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • Paid Caregivers
    • ALS Professionals
  • Planning
    • Health Insurance
    • Employment
    • Self-Care
    • Medical Decisions
    • Research and Clinical Trials
    • Care Options
    • Advance Directives
    • Legacy
    • Transportation
    • Home Modifications
    • Travel
  • Guides
    • Home & Daily Living
    • Newly Diagnosed
    • Respiratory
    • Power Wheelchairs
    • Communication
    • Braces
  • Equipment
    • ALS Equipment Guide
    • Mobility
    • Transfer Devices
    • Ramps and Lifts
    • Toileting Devices
    • Tub and Shower Devices
    • Braces and Splints
    • Grooming Devices
    • Dressing Aids
    • Eating Devices
    • Drinking Devices
    • Sleeping and Beds
    • ALS Smart Home Devices
    • Leisure Devices
    • ALS Equipment Loan Closets
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Newsletter
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    • Get Involved
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  • About
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Palliative Care for ALS


Palliative care provides specialized medical care for anyone diagnosed with a serious illness. A medical team will work with you to manage pain and symptoms and improve your comfort level.

Palliative care adds an additional layer to your current care. Your palliative doctor will coordinate your care with your neurologist and primary care doctor. A nurse and social worker will check on you periodically.
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Here are some facts about palliative care:
​
  • ​You can begin receiving palliative care any time after your ALS diagnosis.​
  • You can receive palliative care in your home, hospital, nursing home, or other long-term care facilities.
  • During palliative care, you can still take approved drugs, participate in drug trials, and receive durable medical equipment through your insurance.
  • Medicare and private insurance plans should cover all or part of palliative care, just as it would for other medical services. Medicaid benefits will vary by state. Ask what would be covered for you.

Talk with your local ALS organization or ALS clinic social worker about palliative care and providers who have experience working with ALS patients. In order to enroll in palliative care, your doctor will need to write you a referral.

On the Get Palliative Care website, you can learn more about ALS palliative care and read answers to frequently asked questions.


ALS Care Options


Home Health Services
​Non-Medical Home Care
Respite Care
Palliative Care
Hospice Care
VA Benefits

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