ALS Caregivers |
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When a person you love dearly is diagnosed with ALS, you know your life is going to change. Just thinking about becoming the primary caregiver can be stressful and overwhelming.
But you do not have to figure everything out on your own—and you do not need to know everything right now. Take things one day at a time. The ALS community is caring and strong. Experienced professionals can answer questions and help guide you every step of the way. |
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How ALS progresses is out of your control. But how you approach it is in your hands. Some caregivers get so focused on supporting their loved one that they neglect their own physical and mental health. We believe that taking good care of yourself will make you a better caregiver.
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ALS Caregiver and AdvocateWhen her husband was diagnosed with ALS five years ago, Lori met with doctors and researchers across the country to find him the best care possible. Since then, she has been a fierce advocate for the entire ALS community. Lori spoke with us about her advocacy work, Facebook group, husband's slow progression, and more. See Lori's interview.
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Supporting Children Affected by ALSJodi is a parent, educator, former caregiver, ALS advocate, and public speaker. Jodi’s husband was diagnosed with ALS when their daughter was just two years old. Jodi is the founder of Hope Loves Company, the only nonprofit in the U.S. dedicated to providing educational and emotional support to children and young adults affected by ALS. See Jodi's interview.
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We encourage you to continue exploring this website at your own pace. Our goal is to provide clear information, connect you to resources, save you money, expand your support network, and generally make life with ALS a little easier. You may want to start with People Living with ALS.
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