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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Research and Clinical Trials
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Testimonials
    • Contact Us

ALS Caregivers


When a person you love dearly is diagnosed with ALS, you know your life is going to change. Just thinking about becoming the primary caregiver can be stressful and overwhelming.

But you do not have to figure everything out on your own—and you do not need to know everything right now. ​Take things one day at a time. The ALS community is caring and strong. Experienced professionals can answer questions and help guide you every step of the way.


See full interview with Allison Bulat
How ALS progresses is out of your control. But how you approach it is in your hands. Some caregivers get so focused on supporting their loved one that they neglect their own physical and mental health. We believe that taking good care of yourself will make you a better caregiver.

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Find Support Services

Connect with local professionals who can guide you every step of the way.

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Take Care of Yourself

To care for your loved one, you need to remember to take care of yourself.

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 Find Quality Time

Remember that caring for your loved one is about more than day-to-day logistics.


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Caregiver Resources

Find links to tips, information, and resources for ALS caregivers.

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Ask for Help

The more support you receive, the more balance and energy you will have.

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Quotes for Caregivers

Download and print inspirational quotes to help you through those tough times.

ALS Caregiver and Advocate

When her husband was diagnosed with ALS five years ago, Lori met with doctors and researchers across the country to find him the best care possible. Since then, she has been a fierce advocate for the entire ALS community. Lori spoke with us about her advocacy work, Facebook group, husband's slow progression, and more. See Lori's interview.
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Supporting Children Affected by ALS

Jodi is a parent, educator, former caregiver, ALS advocate, and public speaker. Jodi’s husband was diagnosed with ALS when their daughter was just two years old. Jodi is the founder of Hope Loves Company, the only nonprofit in the U.S. dedicated to providing educational and emotional support to children and young adults affected by ALS. See Jodi's interview. 
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We encourage you to continue exploring this website at your own pace. Our goal is to provide clear information, connect you to resources, save you money, expand your support network, and generally make life with ALS a little easier. You may want to start with People Living with ALS.
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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