Welcome to Your ALS Guide. We are here to help improve quality of life for families impacted by ALS (also known as Lou Gehrig's disease). Find trusted information, practical tips, educational videos, expert advice, helpful resources, and more—all in one place.
Stay up-to-date on new content, ALS news, equipment, resources, and more.
​After losing Myna Stroth to ALS, our family partnered with leading ALS experts to create the type of practical website that would have helped us. Read more

Educational Guides

Family Caregivers

Taking good care of yourself can make you a better caregiver. You can find self-care tips, interviews with caregivers, and more in our ALS Caregivers section.

NEW: Leaving a Legacy for Loved Ones

The word legacy can mean different things to different people. Some think of it as leaving financial support for family members or institutions. Here we are talking about leaving a meaningful emotional legacy for loved ones. Read more

Genetic ALS

A genetic cause for ALS can be found about 10% of the time. For people with a pathogenic variant (mutation) in the SOD1 gene, there is an approved drug that has been shown to slow disease progression. Learn about genetic testing, counseling, and more. Learn more
“Your ALS Guide continues to set the bar high—you have fantastic content. We are fortunate that there is a place where we can send patients, caregivers, and families (and ourselves) for trusted resources.”
​
​     — Jamey Piggott, Executive Director, ALS Hope Foundation
“Your ALS Guide is my first choice of resource information that I share with families. I know the information is accurate and reliable. This site is intuitive to maneuver and continues to expand to meet the needs of the community. Definitely a leader in providing resource information to the ALS community!”
​
​     — Allison Bulat, Community Engagement Advisor, NEALS / MGH
“Your ALS Guide is really fantastic. You have created a truly excellent resource! It provides just the right amount of information without overwhelming people and caregivers.”
​
​     — Person Living with ALS
“Your information has helped us enormously on my wife’s ALS journey. Thank you so much for what you have done for all of us who suddenly found ourselves in a world we knew nothing about.”
​
​     — Family Caregiver

Order Your ALS Guide Fliers

ALS clinics and organizations often share our fliers with families and include them in new patient packets. If you are an ALS professional, you can order free print fliers or download PDFs.

Popular Topics

Exercise
Nutrition
Sleep
Driving Safety
Transferring
Bathing
Toileting
Range of Motion
Communication
Feeding Tubes
Tracheotomy
Non-Drug Interventions
ALS and the Mind (FTD)
Genetic ALS
Still can't find what you're looking for?
​Your ALS Guide has hundreds of webpages and videos on a wide variety of topics.