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Your Guide to Living With ALS
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Welcome to Your ALS Guide. We are here to help improve everyday quality of life for families impacted by ALS. Find trusted information, practical tips, educational videos, expert advice, helpful resources, and more—all in one place.
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The Joel Goldhirsh ALS Home and Daily Living GuideThis practical, in-depth guide covers mobility, transferring, bathing, dressing, eating, sleeping, mental health, leisure, and more. Visit Guide
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NEW! ALS Equipment GuideWe have created a comprehensive online directory of medical equipment and assistive devices for people living with ALS. Learn about helpful products and purchase them if they are not already covered by insurance or available at a loan closet. Visit Guide
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Have you been newly diagnosed?Whether you've just been diagnosed with ALS, or whether it’s been a few months, this guide will walk you through the most important things you need to know. Visit Guide
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Attend an ALS Clinic
In addition to improving your quality of life, attending an ALS clinic can extend your life by one year or more. Learn about ALS clinics and find a clinic. |
Find Local Support
ALS nonprofit organizations can answer your questions, provide support, connect you to resources, and more. Find support services near you. |
Family CaregiversTaking good care of yourself can make you a better caregiver. There is no need to feel guilty. You can find self-care tips, interviews with caregivers, and more in our ALS Caregivers section.
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Guide for Paid CaregiversMany paid caregivers will have no ALS-specific training when they arrive at your home. To help improve quality of care, you can share our ALS Guide for Paid Caregivers with your caregivers.
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Learning to Live with ALSMobility equipment, a supportive school community, and a slow-progressing case of ALS allowed Todd Kelly to continue teaching high school English for another six years after his diagnosis. He is now an active advocate for the ALS community. See interview
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Who pays?
Medicare, Medicaid, and private insurance usually cover the majority of medical expenses—including equipment—for ALS. Learn more |
Veterans Benefits
Most U.S. military veterans diagnosed with ALS qualify for service-connected benefits that cover most expenses associated with ALS. Read more |
Learn more about ALSOur about ALS section includes video clips with Dr. Richard Bedlack and addresses topics such as symptoms, diagnosis, cause, progression, clinical trials, and approved drugs. Learn more
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