ALS Caregiver and AdvocateWhen her husband was diagnosed with ALS five years ago, Lori met with doctors and researchers across the country to find him the best care possible. Since then, she has been a fierce advocate for the entire ALS community. Lori spoke with us about her advocacy work, Facebook group, husband's slow progression, and more. See interview.
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Newly Diagnosed Guide for ALS
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Whether you've just been diagnosed, or whether it’s been a few months, this guide will walk you through the most important things you need to know, from the diagnosis to next steps to planning ahead. Find helpful tips and dozens of video clips with ALS experts in our Newly Diagnosed Guide.
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Obi: An Independent Eating DeviceObi is a robotic feeding device that allows people with limited hand and arm strength and mobility to feed themselves. Obi can be controlled by your hand, head, foot, or breath. Simple controls allow you to choose what you want to eat, when you want to eat it. Learn more.
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ALS Clinics DirectoryLocate a clinic near you in our comprehensive directory to ALS clinics in the U.S. |
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The Pros and Cons
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Your ALS Power
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Communication
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Our Content DirectorAs Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.
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Our StoryYour ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.
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