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Your Guide to Living With ALS
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Welcome to Your ALS GuideWe are here to help improve quality of life for families impacted by ALS (also known as Lou Gehrig's disease). Find trusted information, practical tips, educational videos, expert advice, helpful resources, and more—all in one place.
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After losing Myna Stroth to ALS, our family partnered with leading ALS experts to create the type of practical website that would have helped us. Read more
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Family CaregiversTaking good care of yourself can make you a better caregiver. You can find self-care tips, interviews with caregivers, and more in our ALS Caregivers section.
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ALS Study Needs Your HelpALL ALS, the largest observational ALS study to date, needs more participants. If you are living with ALS, you can participate in person or 100% remotely. ALL ALS is not a drug trial, but it aims to accelerate drug development and drive research breakthroughs. LEARN MORE
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Testimonials
“Your ALS Guide is a trusted source of information for people living with ALS and those who love and care for them.”
— Jerry Dawson, President and CEO, ALS United
“Your ALS Guide continues to set the bar high. We are fortunate that there is a place where we can send patients, caregivers, and families (and ourselves) for resources.”
— Jamey Piggott, Executive Director, ALS Hope Foundation
“Your information has helped us enormously on my wife’s ALS journey. Thank you so much for what you have done for all of us who suddenly found ourselves in a world we knew nothing about.”
— ALS caregiver
“Your ALS Guide is really fantastic. You have created a truly excellent resource! It provides just the right amount of information without overwhelming people and caregivers.”
— Person living with ALS
Read more
— Jerry Dawson, President and CEO, ALS United
“Your ALS Guide continues to set the bar high. We are fortunate that there is a place where we can send patients, caregivers, and families (and ourselves) for resources.”
— Jamey Piggott, Executive Director, ALS Hope Foundation
“Your information has helped us enormously on my wife’s ALS journey. Thank you so much for what you have done for all of us who suddenly found ourselves in a world we knew nothing about.”
— ALS caregiver
“Your ALS Guide is really fantastic. You have created a truly excellent resource! It provides just the right amount of information without overwhelming people and caregivers.”
— Person living with ALS
Read more
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Your ALS Guide has hundreds of webpages and videos on a wide variety of topics.
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