Your ALS Guide

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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • Family & Friends
    • Research and Clinical Trials
  • Planning
    • Health Insurance
    • Employment
    • Medical Decisions
    • Care
    • Advance Directives
    • ALS Nutrition
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Contact Us

Your Guide to Living with ALS
Newly Diagnosed
People Living with ALS
Caregivers
Family & Friends
Veterans

Exclusive Video Interview with Dr. Bedlack

Your ALS Guide interviewed Duke ALS Clinic neurologist Dr. Richard Bedlack on topics such as ALS symptoms, diagnosis, cause, progression, research, and treatment. You can find video clips from his interview in our brand new About ALS section.


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ALS Respiratory Guide

Learn about respiratory challenges, intervention, support, and equipment. 

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ALS Clinics Directory

Locate a clinic near you in our comprehensive directory to ALS clinics in the U.S.

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ALS Braces Guide

Our newest guide includes expert videos and tips for neck, wrist, and foot braces.

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The Pros and Cons
​of a Tracheotomy

Full-time ventilation can extend your life, but come at a great expense.

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Your ALS Power
​Wheelchair Guide

Find tips, information, and videos on custom tilt-and-recline power wheelchairs.
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Communication
​Options ​with ALS

Learn about voice banking, low-tech solutions, and speech-generating devices.

Medicare Waiting Period Eliminated!

Thanks to advocacy efforts, Congress passed a law in December 2020 that waived the five-month waiting period for ALS Medicare and SSDI benefits. In March 2021, a follow-up bill made the change retroactive for people who had already applied. If you’re still waiting for benefits, contact your local ALS organization.
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Equipment for ALS


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Braces


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Home & Daily Living


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Bathroom



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Mobility


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Respiratory


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Communication





Our Content Director

As Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.
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Our Story

​Your ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
Family & Friends
​​Research & Trials

Planning

Health Insurance
Employment

Medical Decisions
Care

Advance Directives
​
ALS Nutrition
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​Contact Us
Copyright © 2021 Your ALS Guide