New: Interview with ALS Mental Health Specialist
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Mary Holt-Paolone, Clinical Nurse Coordinator and Mental Health Specialist at the MDA/ALS Center of Hope at Temple University, discusses coping with the diagnosis, managing anxiety and depression, the benefits of counseling, constructive communication strategies, and more. See interview.
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ALS Clinics DirectoryLocate a clinic near you in our comprehensive directory to ALS clinics in the U.S. |
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The Pros and Cons
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Your ALS Power
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Communication
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Vivo 45 LS Portable VentilatorWeighing just 5.3 pounds, the Vivo 45 LS by Breas is one of the smallest ventilators on the market. Its ultra-compact design maximizes mobility and independence for people living with ALS. You can use the Vivo for breathing support at night, intermittent breathing support during the day, or as a full-time life support ventilator. Learn more.
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An Interview with Joel GoldhirshThree years after his diagnosis, Joel Goldhirsh is collaborating with Your ALS Guide and ALS Hope Foundation to develop an online training guide for ALS caregivers. In his recent video interview, Joel discusses his experiences with caregivers, his self-care routine, his mental approach to living with ALS, and more. See interview.
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ALS Self-Care Tips and Information
Our Content DirectorAs Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.
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Our StoryYour ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.
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