Newly Diagnosed Guide

​Whether you've just been diagnosed with ALS, or whether it’s been a few months, this guide will walk you through the most important things you need to know, from the diagnosis to next steps to planning ahead. Find helpful tips and dozens of video clips with ALS experts in our Newly Diagnosed Guide.

ALS Respiratory Guide

Learn about respiratory challenges, intervention, support, and equipment. 

ALS Clinics Directory

Locate a clinic near you in our comprehensive directory to ALS clinics in the U.S.

ALS Braces Guide

Our newest guide includes expert videos and tips for neck, wrist, and foot braces.

The Pros and Cons
​of a Tracheotomy

Full-time ventilation can extend your life—and come at a great cost.

Your ALS Power
​Wheelchair Guide

Find tips, information, and videos on custom tilt-and-recline power wheelchairs.

Communication
​Options ​with ALS

Learn about voice banking, low-tech solutions, and speech-generating devices.

New ALS Drug RELYVRIO (AMX0035) Approved by FDA

On Sept. 29, the U.S. Food and Drug Administration (FDA) approved AMX0035, a new ALS drug that will be marketed in the United States under the name RELYVRIO. Phase 2 clinical trial results from 2020 indicate that this new drug can slow ALS functional decline in a meaningful way. Learn more on our new RELYVRIO page.

An Interview with Joel Goldhirsh

Three years after his diagnosis, Joel Goldhirsh is collaborating with Your ALS Guide and ALS Hope Foundation to develop an online training guide for ALS caregivers. In his recent video interview, Joel discusses his experiences with caregivers, his self-care routine, his mental approach to living with ALS, and more. See interview.

Connect with Us

A Caregiver's Story – Allison Bulat

Allison lost her husband to ALS in 2016, just 13 months after his diagnosis. Since then, she has dedicated herself to advancing research and treatment options for families affected by ALS. Allison discusses the physical, logistical, and emotional challenges that ALS caregivers face. See interview.

Our Content Director

As Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.

Our Story

​Your ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.