Your ALS Guide

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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Research and Clinical Trials
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Testimonials
    • Contact Us

Your Guide to Living with ALS
Newly Diagnosed
People Living with ALS
Caregivers
Veterans
ALS Professionals


Summer Camp for Children and Youth Affected by ALS

Hope Loves Company is hosting free weekend retreats in six states for children, teens, and young adults affected by ALS. Campers will enjoy fun recreational activities, develop healthy coping skills, and connect with peers who share similar experiences. Adults are also welcome to attend. See dates and locations.

Newly Diagnosed Guide for ALS

​Whether you've just been diagnosed, or whether it’s been a few months, this guide will walk you through the most important things you need to know, from the diagnosis to next steps to planning ahead. Find helpful tips and dozens of video clips with ALS experts in our Newly Diagnosed Guide.


ALS Self-Care Tips and Information

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Conserving Energy

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Nutrition

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Sleep


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Self-Advocacy

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Exercise

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Range of Motion


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Medical Devices

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Driving Safety

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Quality of Life


Connect with Us

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Sign up for our newsletter
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Visit our YouTube channel
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​Follow us on Facebook

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ALS Respiratory Guide

Learn about respiratory challenges, intervention, support, and equipment. 

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ALS Clinics Directory

Locate a clinic near you in our comprehensive directory to ALS clinics in the U.S.

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ALS Braces Guide

Our newest guide includes expert videos and tips for neck, wrist, and foot braces.

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The Pros and Cons
​of a Tracheotomy

Full-time ventilation can extend your life—and come at a great cost.

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Your ALS Power
​Wheelchair Guide

Find tips, information, and videos on custom tilt-and-recline power wheelchairs.
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Communication
​Options ​with ALS

Learn about voice banking, low-tech solutions, and speech-generating devices.



A Caregiver's Story – Allison Bulat

Allison lost her husband to ALS in 2016, just 13 months after his diagnosis. Since then, she has dedicated herself to advancing research and treatment options for families affected by ALS. Allison discusses the physical, logistical, and emotional challenges that ALS caregivers face. See interview.

Equipment for ALS


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Braces


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Home & Daily Living


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Bathroom



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Mobility


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Respiratory


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Communication




Our Content Director

As Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.
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Our Story

​Your ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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