​Trusted tips, resources, and information for
​your ALS journey

NEW: Your ALS Clinics Directory

Search for an ALS clinic near you in the most comprehensive, up-to-date directory of ALS clinics in the United States. Find clinics that are either independent or affiliated with The ALS Association, Muscular Dystrophy Association (MDA), or Department of Veterans Affairs (VA).

NEW: ALS Clinics at the VA

​In many areas of the country, VA medical centers and outpatient clinics provide veterans with access to medical care. A growing number of VA medical centers have ALS clinics with teams of ALS specialists who provide coordinated care for veterans. Attending one of these clinics can extend your life and improve your quality of life.

ALS Power Wheelchair Guide – Coming September 2018

Your ALS Guide recently sat down with Andrew Heitz from Quantum Rehab for an interview and custom power wheelchair demonstration.

​Our upcoming guide will include an educational video series on power mobility options, features, and the ordering process.

ALS News

Clinical Trial Grant Awarded to Find ALS Biomarkers
The Muscular Dystrophy Association awarded $750,000 to Massachusetts General Hospital to help accelerate ALS biomarker research.
Scientists Link Gene to ALS
A large-scale study led by a team of top international experts has definitively linked the KIF5A gene to ALS.
Webinar: Effects of Curcumin 
On August 13, a doctor from Duke ALS Clinic discussed the potentially useful biological effects of curcumin, one of the ingredients in tumeric and curry powder.

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Apply for disability benefits

Most people with ALS qualify for Social Security and Medicare disability benefits. You do not have to be 65. These key benefits provide health insurance and a monthly income. There is a five-month waiting period.

Travel with ALS

Though it will take more patience and planning, you may still be able to travel. With a companion, you can catch a flight or take a road trip in a handicap-accessible van. Why not visit loved ones or explore a new destination?

Enroll in the ALS Registry

The National ALS Registry is a database that collects information from volunteers with ALS to help scientists learn more and work toward a cure. You can help make a difference by enrolling and filling out the short survey.

About Us

Your ALS Guide is designed to provide clear information, connect you to resources, save you money, expand your support network, and generally make life with ALS a little easier.
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​This website is dedicated to Myna Stroth and her courageous struggle with ALS. Myna’s brother Tom, nephew David, and former ALS Association Care Services Director, Kim Hughes, created this website for families facing similar challenges.