Newly Diagnosed Guide for ALS
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Whether you've just been diagnosed, or whether it’s been a few months, this guide will walk you through the most important things you need to know, from the diagnosis to next steps to planning ahead. Find helpful tips and dozens of video clips with ALS experts in our Newly Diagnosed Guide.
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VOCSN Multi-Function VentilatorVOCSN is the first multi-function ventilator that integrates the capabilities of a portable ventilator, cough assist, suction machine, and oxygen concentrator into one portable respiratory device. VOCSN can be used with a mouthpiece, mask, or trach. Learn more.
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ALS Clinics DirectoryLocate a clinic near you in our comprehensive directory to ALS clinics in the U.S. |
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The Pros and Cons
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Your ALS Power
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Communication
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A Caregiver's Story – Allison Bulat
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Allison lost her husband to ALS in 2016, just 13 months after his diagnosis. Since then, she has dedicated herself to advancing research and treatment options for families affected by ALS. Allison discusses the physical, logistical, and emotional challenges that ALS caregivers face. See interview.
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Our Content DirectorAs Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.
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Our StoryYour ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.
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