Exclusive Video Interview with Dr. Bedlack
Your ALS Guide interviewed Duke ALS Clinic neurologist Dr. Richard Bedlack on topics such as ALS symptoms, diagnosis, cause, progression, research, and treatment. You can find video clips from his interview in our brand new About ALS section.
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ALS Clinics DirectoryLocate a clinic near you in our comprehensive directory to ALS clinics in the U.S. |
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The Pros and Cons
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Your ALS Power
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Communication
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Medicare Waiting Period Eliminated!
Thanks to advocacy efforts, Congress passed a law in December 2020 that waived the five-month waiting period for ALS Medicare and SSDI benefits. In March 2021, a follow-up bill made the change retroactive for people who had already applied. If you’re still waiting for benefits, contact your local ALS organization.
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Our Content DirectorAs Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.
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Our StoryYour ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.
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