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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • Research and Clinical Trials
    • Get Involved
    • Resource List
    • Glossary
  • About
    • Our Story
    • Myna's Story
    • Our Team
    • Newsletter
    • Testimonials
    • Contact Us

Your Guide to Living With ALS
Newly Diagnosed
People Living with ALS
Caregivers
Veterans
ALS Professionals

New: Interview with ALS Mental Health Specialist

Mary ​Holt-Paolone, Clinical Nurse Coordinator and Mental Health Specialist at the MDA/ALS Center of Hope at Temple University, discusses coping with the diagnosis, managing anxiety and depression, the benefits of counseling, constructive communication strategies, and more. See interview.

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ALS Respiratory Guide

Learn about respiratory challenges, intervention, support, and equipment. 

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ALS Clinics Directory

Locate a clinic near you in our comprehensive directory to ALS clinics in the U.S.

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ALS Braces Guide

Our newest guide includes expert videos and tips for neck, wrist, and foot braces.

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The Pros and Cons
​of a Tracheotomy

Full-time ventilation can extend your life—and come at a great cost.

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Your ALS Power
​Wheelchair Guide

Find tips, information, and videos on custom tilt-and-recline power wheelchairs.
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Communication
​Options ​with ALS

Learn about voice banking, low-tech solutions, and speech-generating devices.



Vivo 45 LS Portable Ventilator

Weighing just 5.3 pounds, the Vivo 45 LS by Breas is one of the smallest ventilators on the market. Its ultra-compact design maximizes mobility and independence for people living with ALS. You can use the Vivo for breathing support at night, intermittent breathing support during the day, or as a full-time life support ventilator. Learn more.
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Equipment for ALS


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Braces
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Daily Living
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Bathroom
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Respiratory
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Mobility
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Communication

An Interview with Joel Goldhirsh

Three years after his diagnosis, Joel Goldhirsh is collaborating with Your ALS Guide and ALS Hope Foundation to develop an online training guide for ALS caregivers. In his recent video interview, Joel discusses his experiences with caregivers, his self-care routine, his mental approach to living with ALS, and more. See interview.
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ALS Self-Care Tips and Information

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Conserving Energy

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Nutrition

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Sleep


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Self-Advocacy

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Exercise

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Range of Motion


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Medical Devices

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Driving Safety

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Quality of Life





Our Content Director

As Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.
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Our Story

​Your ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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