NEW: Newly Diagnosed Guide for ALS

​Whether you've just been diagnosed, or whether it’s been a few months, this guide will walk you through the most important things you need to know, from the diagnosis to next steps to planning ahead. Find helpful tips and dozens of videos clips with ALS experts in our Newly Diagnosed Guide.

ALS Respiratory Guide

Learn about respiratory challenges, intervention, support, and equipment. 

ALS Clinics Directory

Locate a clinic near you in our comprehensive directory to ALS clinics in the U.S.

ALS Braces Guide

Our newest guide includes expert videos and tips for neck, wrist, and foot braces.

The Pros and Cons
​of a Tracheotomy

Full-time ventilation can extend your life, but come at a great expense.

Your ALS Power
​Wheelchair Guide

Find tips, information, and videos on custom tilt-and-recline power wheelchairs.

Communication
​Options ​with ALS

Learn about voice banking, low-tech solutions, and speech-generating devices.

Medicare Waiting Period Eliminated!

Thanks to advocacy efforts, Congress passed a law in December 2020 that waived the five-month waiting period for ALS Medicare and SSDI benefits. In March 2021, a follow-up bill made the change retroactive for people who had already applied. If you’re still waiting for benefits, contact your local ALS organization.

Equipment for ALS

Speech-Generating Device and Environmental Control

The autonoME Residential is a 12" tablet that ​allows you to turn lights off and on, adjust your thermostat, control your television, browse the internet, send text messages, and much more. You can control its user-friendly interface with your hands, eyes, head, voice, or breath (sip and puff). Learn more.

Our Content Director

As Director of Care Services for The ALS Association Arizona Chapter from 2004 to 2016, Kim Hughes worked with hundreds of families affected by ALS. Kim has visited homes, led support groups, served on ALS clinic teams, managed equipment loan closets, advocated on Capitol Hill, and more.

Our Story

​Your ALS Guide is dedicated to Myna Stroth, a retired fourth grade teacher who lost her courageous battle with ALS in 2015. Myna’s family teamed up with her Director of Care Services, Kim Hughes, to create a clear, practical, and trustworthy guide for families facing similar challenges. Read our story.