Below you will find local and national resources that can help support people living with ALS and their families.

Local ALS Support Services in California

We highly recommend connecting with an ALS nonprofit organization that serves your area. These organizations can answer your questions, provide individualized support, connect you to resources, and much more—free of charge.

ALS Network (Formerly ALS Golden West)

Each person with ALS who registers with ALS Network is connected with a compassionate professional care manager who can help maximize health, independence, mobility, safety, and communication. Services are provided free of charge, and regardless of immigration status.
Free services include:
​
  • One-on-one relationship with an on-staff professional care manager
  • Assistance navigating benefits
  • Financial assistance
  • Community resource recommendations
  • Referrals to ALS specialists and centers
  • Equipment loan program
  • Connect, Support, Chat groups
  • Bereavement program
  • Family and caregiver support
  • Educational webinars
  • Community gatherings and events

Service Area: California and Hawaii
Website: www.alsnetwork.org 
Phone: (866) 750-2572
Email: [email protected]

ALS United Orange County

ALS United Orange County serves, advocates for, and empowers people affected by ALS to live their lives to the fullest. Its programs and services are designed to meet essential and emotional needs and help improve quality of life.
Free services include:​
​
  • Home visits and case management
  • Support groups
  • Caregiver support and resources
  • Equipment loan program
  • Augmentative communication loan program

Service Area: Orange County, Corona, and Norco, CA
Website: www.alsuoc.org
Phone: (714) 285-1088
Email: [email protected]

The ALS Association

The ALS Association offers a variety of programs and services that help support people living with ALS and their families. The ALS Association provides advocacy leadership, research and clinical trial information, ALS clinic referrals, support groups, Medicare/Insurance Navigation services, a Virtual Home Modification and Safety Assessment program, and My ALS Journey, an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease. Visit their website or call to learn more about services in your area.
Service Area: California (Western Region-Sacramento and San Diego)
Website: www.als.org/support/states/california
Phone: (916) 979-9265
Email: [email protected]

Compassionate Care ALS, Inc. (CCALS)

Since 1998, CCALS has offered an innovative and holistic range of services that are tailored to meet each family’s unique needs. CCALS’ expertise, support, and state-of-the-art equipment can transform the daily lives of individuals, caregivers, and families living with ALS.
Free services include:
​
  • Zoom and home visits
  • Educational gatherings
  • Speaker series
  • Cultivating compassion education series
  • Augmentative communication support
  • Medicare assistance
  • Support and guidance with end-of-life issues
  • Heald Center Education, Retreat, and Respite
  • Transportation to clinical trials and medical appointments (Massachusetts only)
  • Durable medical equipment

Service Area: CCALS is based in Massachusetts and also provides support services in New Hampshire, New York, New Jersey, Connecticut, Florida, California, and Colorado.
Website: www.ccals.org
Phone: (508) 444-6775
Email: [email protected]

ALS Clinics Directory

Attending an ALS clinic can improve your quality of life and help you live longer. Search our comprehensive directory of clinics in the U.S.

National ALS Support and Services

The following organizations can provide support, material assistance, advocacy opportunities, and more for families affected by ALS.

  • The ALS Association offers Medicare and insurance navigation services, a Virtual Home Modification and Safety Assessment program, online educational resources, and more.
  • Hope Loves Company (HLC) provides support to children and young adults affected by ALS, including in-person camps in various states across the country.
  • I AM ALS offers advocacy opportunities, virtual support groups, and ongoing emotional support and logistical guidance for families impacted by ALS.
  • The LiveLikeLou Foundation has volunteers throughout the U.S. and Canada who can help families affected by ALS with tasks in and around the home.
  • Synapticure is a telemedicine healthcare company that provides personalized care and guidance for people living with ALS via video, phone, and email.
  • Team Gleason offers grants that help pay for innovative technology and equipment for people living with ALS. ​

Veterans Benefits

If you are a U.S. military Veteran who has been diagnosed with ALS, you should qualify for substantial service-connected benefits through the VA. The Paralyzed Veterans of America (PVA) is a nonprofit organization that can help Veterans and their families understand and apply for benefits.​
Sign up for our free newsletter to stay up-to-date on new content, equipment, ALS news, resources, and more.

Additional Resources

Our full resource list also includes information for international ALS/MND organizations, research and treatment, children and youth support, health care and Insurance, and online resources.