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Most people with ALS are cared for in their homes by loved ones. Sometimes home care agencies or individuals provide care in the home as well.
Care facilities—such as assisted living, group homes, and skilled facilities with 24/7 hospital-like care—are another option. However, most families cannot afford the $5,000 to $10,000 that it can cost per month. And some people prefer to remain in their own home. |
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A long-term care facility may be an option, if you:
- have the financial means;
- qualify for long-term care through Medicaid; or
- purchased a private long-term care insurance policy prior to your diagnosis
Medicaid Long-term Care
Even if you don’t qualify for Medicaid health insurance, you might be eligible for long-term non-medical care assistance through Medicaid.
How can I find a care facility?
Many care facilities exist, but because ALS is so rare and because most people with ALS are cared for in their homes, it may be hard to find a facility that has experience working with people with ALS.
Finding a good care facility can take a lot of research. Start by asking your local ALS organization or ALS clinic social worker if they are aware of facilities that have worked well with ALS patients in the past.
If there is no such option in your area, try to find a reputable care facility that is willing to work with you. Talk with your local organization and ask if a representative can visit the facility to educate the staff or director on ALS and your specific needs.
Finding a good care facility can take a lot of research. Start by asking your local ALS organization or ALS clinic social worker if they are aware of facilities that have worked well with ALS patients in the past.
If there is no such option in your area, try to find a reputable care facility that is willing to work with you. Talk with your local organization and ask if a representative can visit the facility to educate the staff or director on ALS and your specific needs.
