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Attending an ALS clinic may be the single most important thing you can do to improve your quality of life.
Below you will find contact information for ALS clinics in Texas, as well as tips for contacting them, scheduling an appointment, and preparing for a successful first visit. Military veterans: You will also want to read about ALS clinics at the VA. |
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how to contact a clinic
– Some clinics allow you to schedule an appointment online, but most require you to call. Due to patient privacy laws and concerns, most clinics will not email with you. After you register, though, you can often communicate through their online patient portal
– When you call, you may reach the ALS clinic coordinator directly, or you may be routed to the hospital front desk. Ask for the ALS clinic, or the neurology department.
– If you are unable to speak with the right person, check the listing to see if the clinic is affiliated with The ALS Association or Muscular Dystrophy Association. If so, contact your local chapter for assistance.
– When you call, you may reach the ALS clinic coordinator directly, or you may be routed to the hospital front desk. Ask for the ALS clinic, or the neurology department.
– If you are unable to speak with the right person, check the listing to see if the clinic is affiliated with The ALS Association or Muscular Dystrophy Association. If so, contact your local chapter for assistance.
Questions to ask
Every clinic is different. Some require a doctor's referral or proof of diagnosis before you can schedule an appointment. Most accept Medicare and Medicaid, though private insurance coverage will vary. Once you're talking with the person who schedules appointments for the ALS clinic, ask:
– Do I need a doctor's referral or proof of diagnosis to schedule an appointment?
– Do I need to be registered with The ALS Association or Muscular Dystrophy Association in order to schedule an appointment?
– Do you accept my insurance/Medicare/Medicaid?
– Do you have an estimate of what I might need to pay out of pocket?
If you are concerned about cost, ask if there is any financial assistance available and talk with your local ALS Association or Muscular Dystrophy Association chapter.
– Do I need a doctor's referral or proof of diagnosis to schedule an appointment?
– Do I need to be registered with The ALS Association or Muscular Dystrophy Association in order to schedule an appointment?
– Do you accept my insurance/Medicare/Medicaid?
– Do you have an estimate of what I might need to pay out of pocket?
If you are concerned about cost, ask if there is any financial assistance available and talk with your local ALS Association or Muscular Dystrophy Association chapter.
Tips for a successful visit
Before your visit
– Arrange for transportation to the clinic well ahead of time. Ask a family member or friend to drive and stay with you during the entire appointment. You can also investigate ride services and public transportation options or ask your local ALS Association or Muscular Dystrophy Association chapter if they have travel grants or other suggestions.
– In the time before your appointment, make a complete list of any questions you have about physical symptoms, mental health concerns, equipment, or anything else.
During your visit
– If your appointment is at a large hospital, ask at the front desk for the ALS clinic. If they do not know about the clinic, give the name of the clinic's medical director, or ask for the neurology department.
– During your visit, specialists will rotate to see you individually. Have questions ready for each person, as needed. Do not hesitate to ask anything that concerns you.
– If a family member or friend is with you, ask him or her to take notes. During doctor visits, it can be hard to absorb everything in real time. If you are alone and able to take notes, it will help you remember details between visits.
– During the visit, primary caregivers can ask to speak with the social worker independently to discuss challenges or concerns.
– Before leaving, schedule your next appointment and make sure you have an easy way to contact the clinic coordinator, who is often the nurse or social worker.
After your visit
– Your medical team will meet as a group to discuss your situation. After your visit, they will contact you with recommendations for care and equipment.
– It is usually wise to follow their recommendations. Your team of experts has seen thousands of ALS patients and is making these suggestions to improve your quality of life.
– If you have questions about how to follow the recommendations, call your clinic coordinator.
– You may wish to share your notes and/or the team's recommendations with loved ones so that everyone is on the same page.
– If a question or concern arises between visits, do not hesitate to call your clinic coordinator.
– Jot down any questions you have for your next visit.
– Arrange for transportation to the clinic well ahead of time. Ask a family member or friend to drive and stay with you during the entire appointment. You can also investigate ride services and public transportation options or ask your local ALS Association or Muscular Dystrophy Association chapter if they have travel grants or other suggestions.
– In the time before your appointment, make a complete list of any questions you have about physical symptoms, mental health concerns, equipment, or anything else.
During your visit
– If your appointment is at a large hospital, ask at the front desk for the ALS clinic. If they do not know about the clinic, give the name of the clinic's medical director, or ask for the neurology department.
– During your visit, specialists will rotate to see you individually. Have questions ready for each person, as needed. Do not hesitate to ask anything that concerns you.
– If a family member or friend is with you, ask him or her to take notes. During doctor visits, it can be hard to absorb everything in real time. If you are alone and able to take notes, it will help you remember details between visits.
– During the visit, primary caregivers can ask to speak with the social worker independently to discuss challenges or concerns.
– Before leaving, schedule your next appointment and make sure you have an easy way to contact the clinic coordinator, who is often the nurse or social worker.
After your visit
– Your medical team will meet as a group to discuss your situation. After your visit, they will contact you with recommendations for care and equipment.
– It is usually wise to follow their recommendations. Your team of experts has seen thousands of ALS patients and is making these suggestions to improve your quality of life.
– If you have questions about how to follow the recommendations, call your clinic coordinator.
– You may wish to share your notes and/or the team's recommendations with loved ones so that everyone is on the same page.
– If a question or concern arises between visits, do not hesitate to call your clinic coordinator.
– Jot down any questions you have for your next visit.
The ALS Clinic at Texas Neurology
6301 Gaston Avenue – West Tower, Suite 400
Dallas, TX 75214
Dallas, TX 75214
Phone: (214) 827-3610
Medical Director: Daragh Heitzman, MD
Affiliation: Muscular Dystrophy Association
Request an appointment
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Medical Director: Daragh Heitzman, MD
Affiliation: Muscular Dystrophy Association
Request an appointment
Visit website
Baylor College of Medicine
Department of Neurology
7200 Cambridge, Suite 9A
Houston, TX 77030
7200 Cambridge, Suite 9A
Houston, TX 77030
Phone: (713) 798-2273
Medical Director: Yadollah Harati, MD
Affiliation: The ALS Association
Request an appointment
Visit website
Medical Director: Yadollah Harati, MD
Affiliation: The ALS Association
Request an appointment
Visit website
Dallas VA Medical Center4500 S. Lancaster Rd.
Dallas, TX 75216 |
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Doctors' Hospital at Renaissance
2821 Michael Angelo Dr., Suite 306
Edinburg, TX 78539
Edinburg, TX 78539
The Emory Bellard ALS Clinic
Scott & White Health
300 University Blvd., Building A
Round Rock, TX 78665
300 University Blvd., Building A
Round Rock, TX 78665
Phone: (512) 509-4031, (512) 509-4032
Medical Director: Dr. Jeffrey Tramonte
Affiliation: The ALS Association
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Medical Director: Dr. Jeffrey Tramonte
Affiliation: The ALS Association
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Houston Methodist ALS Clinic
6560 Fannin, Suite 802
Houston, TX 77030
Houston, TX 77030
Phone: (713) 441-3760
Medical Directors: Stanley Appel, MD and Ericka Simpson, MD
Affiliations: The ALS Association and Muscular Dystrophy Association
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Medical Directors: Stanley Appel, MD and Ericka Simpson, MD
Affiliations: The ALS Association and Muscular Dystrophy Association
Visit website
MDA/ALS Center at the University of Texas
Southwest Medical Center at Dallas
5323 Harry Hines Boulevard
Dallas, TX 75235
5323 Harry Hines Boulevard
Dallas, TX 75235
Phone: (214) 827-3610
Medical Director: Jeffrey L. Elliott, MD
Affiliation: Muscular Dystrophy Association
Medical Director: Jeffrey L. Elliott, MD
Affiliation: Muscular Dystrophy Association
Neurology/ALS Clinic at UT Southwestern Medical Center
Aston Building
5303 Harry Hines Blvd, 4th Floor, Suite 100
Dallas, TX 75390
5303 Harry Hines Blvd, 4th Floor, Suite 100
Dallas, TX 75390
Phone: (214) 645-8800
Medical Directors: Jeffrey L. Elliott, MD
Affiliation: Muscular Dystrophy Association
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Medical Directors: Jeffrey L. Elliott, MD
Affiliation: Muscular Dystrophy Association
Visit website
Texas Tech University Health Sciences Center El Paso
4801 Alberta Ave.
El Paso, TX 79905
El Paso, TX 79905
University of Texas Health Science Center – San Antonio
Medical Arts & Research Center
8300 Floyd Curl Drive, 4th Floor, MC 7883
San Antonio, TX 78229
8300 Floyd Curl Drive, 4th Floor, MC 7883
San Antonio, TX 78229
Phone: (210) 450-9700
Medical Director: Carlayne E. Jackson, MD
Affiliation: The ALS Association
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Medical Director: Carlayne E. Jackson, MD
Affiliation: The ALS Association
Visit website
What if there isn't a clinic near me?
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Attending an ALS clinic—once every two or three months—may be the single most important thing you can do to extend your life and improve your quality of life. If you are able to make the drive or arrange for transportation, we strongly recommend going.
If there is not a multidisciplinary ALS clinic near you, there may be other clinics or neurologists at hospitals, private practices, or universities who specialize in ALS. Contact your local ALS Association or Muscular Dystrophy Association chapter to ask about your options. You may also want to search for clinics in neighboring states that may be closer to you. If transportation to the clinic is a challenge, ask your local chapter if they have travel grants, resources, or suggestions. |
Did we miss something?Is there an ALS clinic we missed? Is any information out of date? Email us to help keep the directory current. Thank you! |
