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  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
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    • Family & Friends
  • Planning
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ALS Clinics in Pennsylvania

Attending an ALS clinic may be the single most important thing you can do to improve your quality of life.

​Below you will find contact information for ALS clinics in Pennsylvania, as well as tips for contacting them, scheduling an appointment, and preparing for a successful first visit.

Military veterans: You will also want to read about ALS clinics at the VA.
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how to contact a clinic
– Some clinics allow you to schedule an appointment online, but most require you to call. Due to patient privacy laws and concerns, most clinics will not email with you. After you register, though, you can often communicate through their online patient portal.
​
– 
When you call, you may reach the ALS clinic coordinator directly, or you may be routed to the hospital front desk. Ask for the ALS clinic, or the neurology department.

​– 
If you are unable to speak with the right person, check our listing to see if the clinic is affiliated with The ALS Association or Muscular Dystrophy Association. If so, contact that organization for assistance.
Questions to ask
Every clinic is different. Some require a doctor's referral or proof of diagnosis before you can schedule an appointment. Most accept Medicare and Medicaid, though private insurance coverage will vary. Once you're talking with the person who schedules appointments for the ALS clinic, ask:
​
– Do I need a doctor's referral or proof of diagnosis to schedule an appointment?

– Do I need to be registered with The ALS Association or Muscular Dystrophy Association in order to schedule an appointment?​

– Do you accept my insurance/Medicare/Medicaid?
​
​– 
Do you have an estimate of what I might need to pay out of pocket?
​

If you are concerned about cost, ask if there is any financial assistance available and talk with your local ALS organization.
Tips for a successful visit
Before your visit​

– Arrange for transportation to the clinic well ahead of time. Ask a family member or friend to drive and stay with you during the entire appointment. You can also investigate ride services and public transportation options or ask your local ALS organization if they have travel grants or other suggestions.

​– In the time before your appointment, make a complete list of any questions you have about physical symptoms, mental health concerns, equipment, or anything else.

During your visit

– If your appointment is at a large hospital, ask at the front desk for the ALS clinic. If they do not know about the clinic, give the name of the clinic's medical director, or ask for the neurology department.

– 
During your visit, specialists will rotate to see you individually. Have questions ready for each person, as needed. Do not hesitate to ask anything that concerns you.

– 
If a family member or friend is with you, ask him or her to take notes. During doctor visits, it can be hard to absorb everything in real time. If you are alone and able to take notes, it will help you remember details between visits.

– 
During the visit, primary caregivers can ask to speak with the social worker independently to discuss challenges or concerns.

– 
Before leaving, schedule your next appointment and make sure you have an easy way to contact the clinic coordinator, who is often the nurse or social worker.
​

After your visit

– Your medical team will meet as a group to discuss your situation. After your visit, they will contact you with recommendations for care and equipment.

– 
It is usually wise to follow their recommendations. Your team of experts has seen thousands of ALS patients and is making these suggestions to improve your quality of life.

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If you have questions about how to follow the recommendations, call your clinic coordinator.

– 
You may wish to share your notes and/or the team's recommendations with loved ones so that everyone is on the same page.

– 
If a question or concern arises between visits, do not hesitate to call your clinic coordinator.

​– 
Jot down any questions you have for your next visit.

Allegheny Health Network ALS Center

490 E. North Ave., Suite 500
Pittsburgh, PA 15212
Phone: (412) 359-8850
Contact: Linda Peffer

Medical Director: Sandeep Rana, MD
Affiliation: The ALS Association
​
Visit website

The ALS Clinic at Geisinger Bloomsburg Hospital ​

549 Fair St.
Bloomsburg PA 17814
Phone: (570) 214-1146
​Medical Director: Scott M. Friedenberg, MD​
Affiliations: The ALS Association and Muscular Dystrophy Association

​Visit website

The ALS Clinic at Geisinger Wyoming Valley

620 Baltimore Ave.
​Wilkes Barre PA 18702
Phone: (570) 214-1146
​Medical Director: Dr. David Avila​
Affiliations: The ALS Association and Muscular Dystrophy Association

​Visit website

Conemaugh Health System ALS Clinic

Conemaugh Neuroscience and Pain Institute
​Conemaugh East Hills Outpatient Center

1450 Scalp Avenue, Suite 120
Johnstown, PA 15904
Phone: (814) 269-5061
Medical Director: Jeremy Meisel, MD
​Visit website

Corporal Michael J. Crescenz VA Medical Center

3900 Woodland Avenue
​Philadelphia, PA 19104
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Phone: (215) 823-4331
Medical Director: Colin Quinn, MD
​Visit website

Note:
​ This clinic serves military veterans only.

Jefferson Weinberg ALS Center

909 Walnut Street, Second Floor
​Philadelphia, PA 19107
Phone: (215) 955-8800
Medical Director: Hristelina Ilevia, MD, PhD
Affiliation: The ALS Association
​
Visit website

MDA/ALS Center of Hope at Temple

Temple Neurosciences Center
Temple University Hospital – Main Campus
3401 N. Broad Street
Ambulatory Care Center, Suite D-101
​Philadelphia, PA 19140
Phone: (800) 836-7536
Medical Director: Terry D. Heiman-Patterson, MD
Affiliation: Muscular Dystrophy Association
Request an appointment

​​Visit website

Neuromuscular and ALS Center for Comprehensive Care

Lehigh Valley Hospital – Lehigh Neurology
1250 S. Cedar Crest Blvd.
​Allentown, PA 18103
Phone: (610) 402-8420
Medical Director: Alissa Romano, DO and Alison Walsh, MD
​Affiliation: The ALS Association
​​Visit website

Penn Comprehensive Neuroscience Center

330 S. 9th Street
​Philadelphia, PA 19107
Phone: (215) 829-3053
Medical Directors: Lauren Elman, MD and Colin Quinn, MD, MSPT
Affiliation: Muscular Dystrophy Association​
​​
Visit website

Penn State Hershey ALS Clinic and Research Center

Department of Neurology, EC037
30 Hope Drive
Hershey, PA 17033
Phone: (717) 531-3828
Medical Director: Zachary Simmons, MD
Affiliation: The ALS Association
​
Visit website

MDA-ALS Center at UPMC

UPMC Presbyterian, F872 (HPU 01 08 06)
200 Lothrop Street
Pittsburgh, PA 15213
Phone: (412) 692-4917
Coordinator: Rebecca Molczan, CRNP

Medical Director: Tawfiq Al-Lahham, MD
​Visit website

UPMC Northshore Neurology

120 E 2nd Street,3rd floor
​Erie, PA 16507
Phone: (814) 877-8000
Medical Director: Jeffrey J. Esper, DO
​Visit website

VA Pittsburgh Healthcare System

1010 Delafield Road
Pittsburgh, PA 15215
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Phone: (412) 822-2222
​Visit website

Note: This clinic serves military veterans only.

What if there isn't a clinic near me?

Attending an ALS clinic—once every two or three months—may be the single most important thing you can do to extend your life and improve your quality of life. If you are able to make the drive or arrange for transportation, we strongly recommend going.

​If there is not a multidisciplinary ALS clinic near you, there may be other clinics or neurologists at hospitals, private practices, or universities who specialize in ALS. Contact your local ALS Association or Muscular Dystrophy Association chapter to ask about your options. You may also want to search for clinics in neighboring states that may be closer to you.

​If transportation to the clinic is a challenge, ask your local chapter if they have travel grants, resources, or suggestions.


Did we miss something?

Is there an ALS clinic we missed? Is any information out of date? Email us to help keep the directory current. Thank you!
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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