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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
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    • Home & Daily Living
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ALS Clinics in Florida

Attending an ALS clinic may be the single most important thing you can do to improve your quality of life.

​Below you will find contact information for ALS clinics in Florida, as well as tips for contacting them, scheduling an appointment, and preparing for a successful first visit.

Military veterans: You will also want to read about ALS clinics at the VA.
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how to contact a clinic
– Some clinics allow you to schedule an appointment online, but most require you to call. Due to patient privacy laws and concerns, most clinics will not email with you. After you register, though, you can often communicate through their online patient portal.
​
– 
When you call, you may reach the ALS clinic coordinator directly, or you may be routed to the hospital front desk. Ask for the ALS clinic, or the neurology department.

​– 
If you are unable to speak with the right person, check our listing to see if the clinic is affiliated with The ALS Association or Muscular Dystrophy Association. If so, contact that organization for assistance.
Questions to ask
Every clinic is different. Some require a doctor's referral or proof of diagnosis before you can schedule an appointment. Most accept Medicare and Medicaid, though private insurance coverage will vary. Once you're talking with the person who schedules appointments for the ALS clinic, ask:
​
– Do I need a doctor's referral or proof of diagnosis to schedule an appointment?

– Do I need to be registered with The ALS Association or Muscular Dystrophy Association in order to schedule an appointment?​

– Do you accept my insurance/Medicare/Medicaid?
​
​– 
Do you have an estimate of what I might need to pay out of pocket?
​

If you are concerned about cost, ask if there is any financial assistance available and talk with your local ALS organization.
Tips for a successful visit
Before your visit​

– Arrange for transportation to the clinic well ahead of time. Ask a family member or friend to drive and stay with you during the entire appointment. You can also investigate ride services and public transportation options or ask your local ALS organization if they have travel grants or other suggestions.

​– In the time before your appointment, make a complete list of any questions you have about physical symptoms, mental health concerns, equipment, or anything else.

During your visit

– If your appointment is at a large hospital, ask at the front desk for the ALS clinic. If they do not know about the clinic, give the name of the clinic's medical director, or ask for the neurology department.

– 
During your visit, specialists will rotate to see you individually. Have questions ready for each person, as needed. Do not hesitate to ask anything that concerns you.

– 
If a family member or friend is with you, ask him or her to take notes. During doctor visits, it can be hard to absorb everything in real time. If you are alone and able to take notes, it will help you remember details between visits.

– 
During the visit, primary caregivers can ask to speak with the social worker independently to discuss challenges or concerns.

– 
Before leaving, schedule your next appointment and make sure you have an easy way to contact the clinic coordinator, who is often the nurse or social worker.
​

After your visit

– Your medical team will meet as a group to discuss your situation. After your visit, they will contact you with recommendations for care and equipment.

– 
It is usually wise to follow their recommendations. Your team of experts has seen thousands of ALS patients and is making these suggestions to improve your quality of life.

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If you have questions about how to follow the recommendations, call your clinic coordinator.

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You may wish to share your notes and/or the team's recommendations with loved ones so that everyone is on the same page.

– 
If a question or concern arises between visits, do not hesitate to call your clinic coordinator.

​– 
Jot down any questions you have for your next visit.

ALS Center at the University of Miami

Professional Arts Center Building, Medical Campus
1150 NW 14th Street, Suite 609
Miami, FL 33136
Phone: (800) 690-2571, (305) 243-7400
​Clinic Coordinator: Gina Gonzalez, DNP, ARNP

​Medical Directors: Michael Benatar, MD, PhD and Ashok Verma, MD, DM, MBA
Affiliations: The ALS Association and Muscular Dystrophy Association
Email the clinic for an appointment 
​
Visit website

Winter Park ALS Clinic

Advent Health Medical Group Neurology
1573 W Fairbanks Ave., Suite 210
​Winter Park, FL 32789
Phone: (407) 303-6729
​Medical Director: Nivedita Jerath, M.D.

​​Visit website

Central Neurology

2201 Central Ave. Suite 200
​St. Petersburg, FL 33713
Phone: (727) 914-0200
​​Visit website

The ALS Center at Orlando Health

10000 W Colonial Dr., Ste 289
​Ocoee, FL 34761
Phone: (407) 296-1910
Medical Director: Amy Gutierrez, MD, FAAN
Affiliation: The ALS Association
​​
Visit website

James A. Haley Veterans' Hospital

13000 Bruce B. Downs Blvd.
Tampa, FL 33612
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Phone: (813) 972-2000
​Visit website

Note: This clinic serves military veterans only.

Lee Health ALS Clinic

Outpatient Center at Plantation
13601 Plantation Road
​Fort Myers, FL 33912
Phone: (239) 343-0763
Clinic Coordinator: Carol

Medical Director: Bryant L. Vuong, DO​
Affiliation: The ALS Association
​​
Visit website

Mayo Clinic Florida

Department of Neurology
4500 San Pablo Road
​Jacksonville, FL 32224
Phone: (904) 953-2000
Medical Directors: Dr. Bjorn Oskarsson and Dr. Jaimin Shah
Affiliation: The ALS Association
​
Visit website

Miami VA Healthcare System

1201 N.W. 16th St.
Miami, FL 33125
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Phone: (305) 575-7000
​Visit website

Note: This clinic serves military veterans only.

North Florida/South Georgia Veterans Health System Malcom Randall VA Medical Center

1601 SW Archer Road
Gainesville, FL 32608
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Phone: (352) 376-1611
​Visit website

Note: This clinic serves military veterans only.

The Phil Smith ALS Clinic

Holy Cross Hospital
​
1931 NE 47th St.
​Fort Lauderdale, FL 33308
Phone: (954) 542-3434
Medical Co-Directors: Eduardo Locatelli, MD, MPH and Lauren Tabor-Gray, PhD
Affiliation: The ALS Association
​​
Visit website

UF Gainesville Affiliated ALS Clinic

3009 Williston Road
Gainesville, FL 32608

Phone: (352) 265-5400
Medical Director: James D. Wymer, MD, PhD
Affiliation:​ The ALS Association
​​
Visit website

UF Health Neuromuscular Disease Program – Jacksonville

580 West 8th Street – Tower 1, 9th floor
Jacksonville, FL 32209
Phone: (904) 244-9922
Contact Person: June Solomons

Medical Director: Dr. Michael Pulley
​​
Visit website

University of South Florida ALS Clinic

Morsani Advanced Health Center
13330 Laurel Dr.
Tampa, FL 33612
Phone: (813) 974-9273
Medical Director: Tuan Vu, MD
​Associate Director: Jerrica Farias
Clinic Coordinator: Kayla Martinez
Affiliation: The ALS Association
​​
Visit website

Note: You do not need a referral to attend this clinic.

What if there isn't a clinic near me?

Attending an ALS clinic—once every two or three months—may be the single most important thing you can do to extend your life and improve your quality of life. If you are able to make the drive or arrange for transportation, we strongly recommend going.

​If there is not a multidisciplinary ALS clinic near you, there may be other clinics or neurologists at hospitals, private practices, or universities who specialize in ALS. Contact your local ALS Association or Muscular Dystrophy Association chapter to ask about your options. You may also want to search for clinics in neighboring states that may be closer to you.

​If transportation to the clinic is a challenge, ask your local chapter if they have travel grants, resources, or suggestions.


Did we miss something?

Is there an ALS clinic we missed? Is any information out of date? Email us to help keep the directory current. Thank you!
Back to Directory
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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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