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As a caregiver, you will help your loved one with many aspects of daily living, from bathing to dressing to feeding. You may also spend time coordinating care, transportation, and home modifications, in addition to taking on a larger share of household chores and errands.
In the midst of all of the logistics, it is important to find time to continue living your lives and spending quality time together. |
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Here are some ideas:
- Include (and empower) your loved one. In most cases, your loved one will still have the same cognitive abilities as before. Discuss everything together and let him or her be central to the decision-making process.
- Normalize life. ALS will consume enough of your lives. Continue your everyday routines. When possible, do the things you’ve always enjoyed, like going to ball games, seeing friends, watching TV, and visiting family.
- Get out of the house. Getting some fresh air from time to time can be good for both of you. Whether running errands, meeting friends for dinner, or simply going around the block, changing scenery can provide a refreshing and stimulating break.
- Massage and stretch. With ALS, muscles can tighten and become less flexible. While you are sitting on the couch watching TV, for example, gently massage and stretch tight areas, like hands and fingers. This can help with flexibility and range of motion. It is also a nice way to connect. Try to make this part of your daily routine. Ask the physical or occupational therapist what would be most helpful.
- Take a trip. Logistics permitting, try exploring somewhere new or visiting old friends. Even with a wheelchair, you can travel by plane and rent handicap-accessible vans through companies like Wheelchair Getaways.
- Remember what is important. Your life may change due to the diagnosis, but remember that your loved one is still the same person. Although you will need to adjust to a "new normal," you can still spend loving and quality time together.
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