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  • Home
  • Get Started
    • About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • ALS Professionals
    • Family & Friends
  • Planning
    • Health Insurance
    • Employment
    • Self Care
    • Medical Decisions
    • Care
    • Advance Directives
    • Transportation
    • Home Modifications
    • Travel
  • Equipment
    • Overview
    • Braces
    • Home & Daily Living
    • Bathroom
    • Mobility
    • Respiratory
    • Communication
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
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Caring for Your Loved One


As a caregiver, you will help your loved one with many aspects of daily living, from bathing to dressing to feeding. You may also spend time coordinating care, transportation, nutrition, and home modifications, in addition to taking on a larger share of household chores and errands.

In the midst of all of the logistics, it is important to find time to continue living your lives and spending quality time together.


Here are some ideas:

  • Include (and empower) your loved one. In most cases, your loved one will still have the same cognitive abilities as before. Discuss everything together and let him or her be central to the decision-making process.
 
  • Normalize life. ALS will consume enough of your lives. Try to continue your everyday routines. When possible, do the things you’ve always enjoyed.

  • Get out of the house. Fresh air and a change of scenery can provide a refreshing and stimulating break.
​
  • Massage and stretch. With ALS, muscles can tighten and become less flexible. While you are sitting on the couch watching TV, for example, gently massage and stretch tight areas, like hands and fingers. This can help with flexibility and range of motion. It is also a nice way to connect. Try to make this part of your daily routine. Ask the physical or occupational therapist what would be most helpful.
  
  • Remember what is important. Your life may change due to the diagnosis, but remember that your loved one is still the same person. Although you will need to adjust to a "new normal," you can still spend loving and quality time together.  ​


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Get Started

About ALS
​Newly Diagnosed
People with ALS
Veterans with ALS
Caregivers
ALS Professionals
Family & Friends

Planning

Health Insurance
Employment
Self-Care

Medical Decisions
Care

Advance Directives
Transportation

​Home Modifications
​Travel

Equipment

Overview
​
Braces
​Home & Daily Living
Bathroom
Mobility
Respiratory
Communication​

Resources

ALS Clinics
Support Services

Support Groups
​Research & Trials

Get Involved
Resource list
​Glossary

About

Our Story
Myna's Story
​Our Team
Newsletter
​
Testimonials
​Contact Us
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