|
Below you will find contact information for ALS clinics in Arizona. In addition to improving your quality of life, attending an ALS clinic can extend your life by one year or more.
A team of ALS specialists will meet with you every few months to answer your questions, monitor symptoms, and make recommendations. Clinic visits are typically covered by insurance. Funding may be available for those who cannot afford to pay. Learn more. |
|
Military veterans: If you have been diagnosed with ALS, connect with your local VA to access care through your service-connected benefits.
how to contact a clinic
– Before attending an ALS clinic, you will need to schedule an appointment to see one of the clinic neurologists in order to receive or confirm an ALS diagnosis. If you have a confirmed diagnosis, the doctor will schedule your first clinic appointment.
– When you call, you may reach the ALS clinic coordinator directly. If you are routed to the hospital front desk, ask for the doctor, ALS clinic, or neurology department.
– If you are unable to connect with the right person, try contacting your local ALS organization for assistance.
– When you call, you may reach the ALS clinic coordinator directly. If you are routed to the hospital front desk, ask for the doctor, ALS clinic, or neurology department.
– If you are unable to connect with the right person, try contacting your local ALS organization for assistance.
Questions to ask
Every clinic is different. Most accept Medicare and Medicaid, though private insurance coverage will vary. Once you're talking with the person who schedules appointments for the ALS clinic, ask:
– Do I need a doctor's referral or confirmed diagnosis to schedule an appointment?
– Do you accept my private insurance/Medicare/Medicaid?
– Do you have an estimate of what I might need to pay out of pocket?
If you are concerned about cost, ask the ALS clinic or your local ALS organization if there is any financial assistance available.
– Do I need a doctor's referral or confirmed diagnosis to schedule an appointment?
– Do you accept my private insurance/Medicare/Medicaid?
– Do you have an estimate of what I might need to pay out of pocket?
If you are concerned about cost, ask the ALS clinic or your local ALS organization if there is any financial assistance available.
Tips for a successful visit
Before your visit
– Ask a family member or friend to accompany you to the appointment, if possible.
– Arrange for transportation to the clinic ahead of time. You can look into ride services and public transportation options or ask your local ALS organization if they have travel grants or other suggestions.
– In the time before your appointment, make a list of any questions you have about physical symptoms, mental health concerns, equipment, or anything else.
– Before your appointment, you should receive directions and instructions for your visit.
During your visit
– If your appointment is at a large hospital, ask at the front desk for the ALS clinic, doctor, or neurology department.
– During your visit, specialists will rotate to see you individually. Have questions ready for each professional, as needed. Do not hesitate to ask about anything that concerns you.
– If a family member or friend is with you, ask them to take notes. During visits with your team, it can be hard to absorb everything in real time. If you are alone and able to take notes, it will help you remember details between visits.
– During the visit, primary caregivers can ask to speak with the social worker independently to discuss concerns or challenges.
After your visit
– Your ALS team will meet as a group to discuss your situation and make recommendations for care and equipment. You should receive a summary of the recommendations by mail, through your online patient portal, or however your team chooses to communicate with you. Your team of experts makes these suggestions to help you improve your quality of life.
– If you have questions about how to follow the recommendations, call your clinic coordinator.
– You may wish to share your notes and/or the team's recommendations with loved ones so that everyone is on the same page.
– If a question or concern arises between visits, do not hesitate to call your clinic coordinator.
– Jot down any questions you have for your next visit.
– Ask a family member or friend to accompany you to the appointment, if possible.
– Arrange for transportation to the clinic ahead of time. You can look into ride services and public transportation options or ask your local ALS organization if they have travel grants or other suggestions.
– In the time before your appointment, make a list of any questions you have about physical symptoms, mental health concerns, equipment, or anything else.
– Before your appointment, you should receive directions and instructions for your visit.
During your visit
– If your appointment is at a large hospital, ask at the front desk for the ALS clinic, doctor, or neurology department.
– During your visit, specialists will rotate to see you individually. Have questions ready for each professional, as needed. Do not hesitate to ask about anything that concerns you.
– If a family member or friend is with you, ask them to take notes. During visits with your team, it can be hard to absorb everything in real time. If you are alone and able to take notes, it will help you remember details between visits.
– During the visit, primary caregivers can ask to speak with the social worker independently to discuss concerns or challenges.
After your visit
– Your ALS team will meet as a group to discuss your situation and make recommendations for care and equipment. You should receive a summary of the recommendations by mail, through your online patient portal, or however your team chooses to communicate with you. Your team of experts makes these suggestions to help you improve your quality of life.
– If you have questions about how to follow the recommendations, call your clinic coordinator.
– You may wish to share your notes and/or the team's recommendations with loved ones so that everyone is on the same page.
– If a question or concern arises between visits, do not hesitate to call your clinic coordinator.
– Jot down any questions you have for your next visit.
Barrow Neurological Institute
Gregory W. Fulton ALS Center
240 W. Thomas Road, Suite 400
Phoenix, AZ 85013
Phone: (602) 406-2704
Contact: Rose Anaya-Awwad
Medical Director: Shafeeq Ladha, MD
Visit website
240 W. Thomas Road, Suite 400
Phoenix, AZ 85013
Phone: (602) 406-2704
Contact: Rose Anaya-Awwad
Medical Director: Shafeeq Ladha, MD
Visit website
Mayo Clinic
Department of Neurology
13400 E. Shea Blvd.
Scottsdale, AZ 85259
Phone: (480) 301-8100
Medical Director: Iryna Muzyka, MD
Visit website
13400 E. Shea Blvd.
Scottsdale, AZ 85259
Phone: (480) 301-8100
Medical Director: Iryna Muzyka, MD
Visit website
MDA/ALS Center at Banner – University Medical Group
Banner – University Medical Center South Campus
2800 E. Ajo Way
Tucson, AZ 85713
Phone: (520) 694-8888
Medical Directors: Katalin Scherer, MD and Holli Horak, MD
Visit website
2800 E. Ajo Way
Tucson, AZ 85713
Phone: (520) 694-8888
Medical Directors: Katalin Scherer, MD and Holli Horak, MD
Visit website
The Neuromuscular Clinic
4545 E Shea Blvd
Phoenix, AZ 85028
Phone: (480) 314-1007
Contact: Venessa Paiz
Medical Director: Kumaraswamy Sivakumar, MD
Visit website
Phoenix, AZ 85028
Phone: (480) 314-1007
Contact: Venessa Paiz
Medical Director: Kumaraswamy Sivakumar, MD
Visit website
HonorHealth ALS Clinic
HonorHealth Spine Group Arizona
3621 N. Wells Fargo Ave
Scottsdale, AZ 85251
Phone: (480) 587-6124
Medical Directors: Todd Levine, MD
Visit website
3621 N. Wells Fargo Ave
Scottsdale, AZ 85251
Phone: (480) 587-6124
Medical Directors: Todd Levine, MD
Visit website
Phoenix VA Health Care System ALS Clinic
650 E. Indian School Road
Phoenix, AZ 85012
Phone: (602) 277-5551 ext. 7657
Clinic Coordinator: Bobbie Anderson
Email: [email protected]
Medical Director: Dr K. Sivakumar
Visit website
Note: This clinic serves military veterans only.
Phoenix, AZ 85012
Phone: (602) 277-5551 ext. 7657
Clinic Coordinator: Bobbie Anderson
Email: [email protected]
Medical Director: Dr K. Sivakumar
Visit website
Note: This clinic serves military veterans only.
Southern AZ VA Health Care System ALS Clinic
3601 S. 6th Ave
Tucson, AZ 85747
Phone: (520) 792-1450 ext. 15750
Clinic Coordinator: Shaun Rudh, LCSW
Email: [email protected]
Medical Director: Cristina Matei, M.D.
Note: This clinic serves military veterans only.
Tucson, AZ 85747
Phone: (520) 792-1450 ext. 15750
Clinic Coordinator: Shaun Rudh, LCSW
Email: [email protected]
Medical Director: Cristina Matei, M.D.
Note: This clinic serves military veterans only.
What if there isn't a clinic near me?
Attending an ALS clinic once every three or so months may be the most important thing you can do to extend your life and improve your quality of life. If you are able to make the drive or arrange for transportation, we strongly recommend going.
If there is not a multidisciplinary ALS clinic near you, there may be other clinics or neurologists at hospitals, private practices, or universities that specialize in ALS. Contact your local ALS organization to ask about your options. You may also want to search for clinics in neighboring states that may be closer to you.
If transportation to the clinic is a challenge, ask your local organization if they have travel grants, resources, or suggestions.
You can also reach out to Synapticure, a telemedicine healthcare company that provides personalized care for people living with ALS via video, phone, and email.
If there is not a multidisciplinary ALS clinic near you, there may be other clinics or neurologists at hospitals, private practices, or universities that specialize in ALS. Contact your local ALS organization to ask about your options. You may also want to search for clinics in neighboring states that may be closer to you.
If transportation to the clinic is a challenge, ask your local organization if they have travel grants, resources, or suggestions.
You can also reach out to Synapticure, a telemedicine healthcare company that provides personalized care for people living with ALS via video, phone, and email.
Learn More
Did we miss something?
Is there an ALS clinic we missed? Is any information out of date? Please email us to help keep this directory current for our community. Thank you!
