Your ALS Guide would like to thank the following individuals for helping to shape and review the content of this Newly Diagnosed Guide for ALS.
|
Dr. Richard Bedlack is an ALS neurologist and associate professor who holds both an MD and PhD in neuroscience. As director of the Duke ALS Clinic, Dr. Bedlack has worked with thousands of families affected by ALS. He is also an active researcher who has received research grants, participated in clinical trials, and received many awards, including ALS Patient Advocate of the Year. Dr. Bedlack leads a team of international investigators who review the efficacy of alternative treatments on www.ALSUntangled.com.
|
|
Stacey Asnani is the social worker and clinic coordinator at the Duke ALS Clinic. For 15 years, she has educated, counseled, and supported thousands of families affected by ALS. Stacey is a licensed clinical social worker with a master’s degree in social work. “What we do truly does make a difference in the lives of those we care for,” she says, “and, even though we cannot make the disease go away (yet!), there is still so much that can be done to improve the quality of their lives and support them throughout their journey.”
|
|
Allison Bulat has worked in the software and information technology field for over 20 years. After her husband passed away from ALS, Allison dedicated herself to advocating for families on the ALS journey. In addition to serving on the Board of Directors for the ALS Association Arizona Chapter, she co-chairs the Patient Education and Advocacy Committee at the Northeast ALS Consortium (NEALS) and is a Patient Navigation Consultant for the Healey ALS Platform Trial at Massachusetts General Hospital.
|
|
Dolly Sandoval has taught high school math in northern California for over 30 years. When her husband, Ed, was diagnosed with ALS in 2015, they made a travel bucket list and decided “to live large.” In the two and a half years between Ed’s diagnosis and passing, they traveled to nine different countries. Dolly has written two articles for Your ALS Guide. In Our Last Big Trip, she offers tips for traveling with ALS. And in her article, Advice from a Former ALS Caregiver, Dolly writes: “Remember, caregivers: we can only give the best when we are at our best, so please take care of yourself.”
|
