We highly recommend connecting with a local ALS nonprofit organization that serves your area. These organizations can answer your questions, provide individualized support, connect you to resources, and much more—free of charge.
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ALS Clinics DirectoryAttending an ALS clinic can improve your quality of life and help you live longer. Search our comprehensive directory of clinics in the U.S.
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National ALS Support and Services
The following organizations can provide support, material assistance, advocacy opportunities, and more for families affected by ALS.
- The ALS Association offers Medicare and insurance navigation services, a Virtual Home Modification and Safety Assessment program, online educational resources, and more.
- ALS United member organizations provide comprehensive and individualized on-the-ground support for families impacted by ALS in many parts of the U.S.
- Compassionate Care ALS (CCALS) offers an innovative and holistic range of in-person and virtual services that are tailored to meet each family’s unique needs.
- Hope Loves Company (HLC) provides support to children and young adults affected by ALS, including in-person camps in various states across the country.
- I AM ALS offers advocacy opportunities, virtual support groups, and ongoing emotional support and logistical guidance for families impacted by ALS.
- The LiveLikeLou Foundation has volunteers throughout the U.S. and Canada who can help families affected by ALS with tasks in and around the home.
- Synapticure is a telemedicine healthcare company that provides personalized care and guidance for people living with ALS via video, phone, and email.
- Team Gleason offers grants that help pay for innovative technology and equipment for people living with ALS.
Veterans Benefits
If you are a U.S. military veteran who has been diagnosed with ALS, you should qualify for service-connected benefits through the VA. The Paralyzed Veterans of America (PVA) is a nonprofit organization that can help veterans and families understand and apply for benefits.
Additional Resources
Our full resource list also includes information for international ALS/MND organizations, research and treatment, children and youth support, health care and Insurance, and online resources.