The ALS Association
If you only do one thing, contact your local ALS Association chapter. They will work with you on an individual basis, guide you through the process, and connect you to other resources. Their services are free and they will also help save you money through their equipment loan closet.
Muscular Dystrophy Association (MDA)
MDA supports individuals and families affected by muscular dystrophy, ALS, and related life-threatening diseases. Though ALS is not their sole focus, MDA provides information, support services, and clinics for people affected by ALS.
Attending an ALS clinic is one of the best things you can do for your health and quality of life. A highly specialized medical team will meet with you, monitor your progress, and make treatment and equipment recommendations. Studies indicate that attending clinic can extend your life.
Attending an ALS support group gives you the chance to connect and share with other people with ALS, caregivers, and loved ones. ALS can be isolating. Support groups can provide perspective, insights, tips, resources, and information that can improve your quality of life.
Every community has a wealth of local resources, from ALS support services to transportation providers to hospice organizations. As a pilot project, we have created a list of resources for the Phoenix metro area, which may expand to include other communities across the country.