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Your Guide to Living With ALS
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Welcome to Your ALS GuideWe are here to help improve quality of life for families impacted by ALS (also known as Lou Gehrig's disease). Find trusted information, practical tips, educational videos, expert advice, helpful resources, and more—all in one place.
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After losing Myna Stroth to ALS, our family partnered with leading ALS experts to create the type of practical website that would have helped us. Read more
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Family CaregiversTaking good care of yourself can make you a better caregiver. You can find self-care tips, interviews with caregivers, and more in our ALS Caregivers section.
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ALS Communication OptionsWe revamped our Communication page and expanded it into a section that includes more information about lite-tech options, voice banking, device access, speech-generating devices, resources, and more. Learn More
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For ALS and Healthcare Professionals
Your ALS Guide can support professionals in a variety of ways. Learn about our free educational handouts, fliers, newsletter, and content licensing program.
“Your ALS Guide continues to set the bar high—you have fantastic content. We are fortunate that there is a place where we can send patients, caregivers, and families (and ourselves) for trusted resources.”
— Jamey Piggott, Executive Director, ALS Hope Foundation
— Jamey Piggott, Executive Director, ALS Hope Foundation
“Your ALS Guide is really fantastic. You have created a truly excellent resource! It provides just the right amount of information without overwhelming people and caregivers.”
— Person Living with ALS
— Person Living with ALS
“Your information has helped us enormously on my wife’s ALS journey. Thank you so much for what you have done for all of us who suddenly found ourselves in a world we knew nothing about.”
— Family Caregiver
— Family Caregiver
Genetic ALSA genetic cause for ALS can be found about 10% of the time. For people with a pathogenic variant (mutation) in the SOD1 gene, there is an approved drug that has been shown to slow disease progression. Learn about genetic testing, counseling, and more. Learn more
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Popular Topics
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Still can't find what you're looking for?
Your ALS Guide has hundreds of webpages and videos on a wide variety of topics.
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