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Your Guide to Living With ALS
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Welcome to Your ALS GuideWe are here to help improve quality of life for families impacted by ALS (also known as Lou Gehrig's disease). Find trusted information, practical tips, educational videos, expert advice, helpful resources, and more—all in one place.
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After losing Myna Stroth to ALS, our family partnered with leading ALS experts to create the type of practical website that would have helped us. Read more
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Family CaregiversTaking good care of yourself can make you a better caregiver. You can find self-care tips, interviews with caregivers, and more in our ALS Caregivers section.
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The National ALS RegistryYou can help ALS researchers identify potential risk factors and promising new areas of research. All you need to do is register and fill out short online surveys about your ALS story. The National ALS Registry also helps determine the number of people living with ALS in the United States. Learn More
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ALS Communication OptionsWe revamped our Communication page and expanded it into a section that includes more information about lite-tech options, voice banking, device access, speech-generating devices, resources, and more. Learn More
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Testimonials
“Your ALS Guide is a trusted source of information for people living with ALS and those who love and care for them.”
— Jerry Dawson, President and CEO, ALS United
“Your ALS Guide continues to set the bar high. We are fortunate that there is a place where we can send patients, caregivers, and families (and ourselves) for resources.”
— Jamey Piggott, Executive Director, ALS Hope Foundation
“Your information has helped us enormously on my wife’s ALS journey. Thank you so much for what you have done for all of us who suddenly found ourselves in a world we knew nothing about.”
— ALS caregiver
“Your ALS Guide is really fantastic. You have created a truly excellent resource! It provides just the right amount of information without overwhelming people and caregivers.”
— Person living with ALS
Read more
— Jerry Dawson, President and CEO, ALS United
“Your ALS Guide continues to set the bar high. We are fortunate that there is a place where we can send patients, caregivers, and families (and ourselves) for resources.”
— Jamey Piggott, Executive Director, ALS Hope Foundation
“Your information has helped us enormously on my wife’s ALS journey. Thank you so much for what you have done for all of us who suddenly found ourselves in a world we knew nothing about.”
— ALS caregiver
“Your ALS Guide is really fantastic. You have created a truly excellent resource! It provides just the right amount of information without overwhelming people and caregivers.”
— Person living with ALS
Read more
Popular Topics
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Still can't find what you're looking for?
Your ALS Guide has hundreds of webpages and videos on a wide variety of topics.
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