Below you will find local and national resources that can help support people living with ALS and their families.

Local ALS Support Services in Rhode Island

We highly recommend connecting with an ALS nonprofit organization that serves your area. These organizations can answer your questions, provide individualized support, connect you to resources, and much more—free of charge.

ALS United Rhode Island

ALS United Rhode Island serves, advocates for, and empowers people affected by ALS to live their lives to the fullest.
Free services include:
  • Individual consultations and home visits
  • Monthly support groups
  • Equipment loan closet
  • ALS clinic coordination
  • Wheelchair-accessible transportation program
  • Respite care program
  • Annual ALS symposium

Service Area: Rhode Island + limited services in southeastern Massachusetts
Website: www.alsunitedri.org
Phone: (401) 732-1609
Email: [email protected]

ALS Clinics Directory

Attending an ALS clinic can improve your quality of life and help you live longer. Search our comprehensive directory of clinics in the U.S.

National ALS Support and Services

The following organizations can provide support, material assistance, advocacy opportunities, and more for families affected by ALS.

  • The ALS Association offers Medicare and insurance navigation services, a Virtual Home Modification and Safety Assessment program, online educational resources, and more.
  • Compassionate Care ALS (CCALS) offers an innovative and holistic range of in-person and virtual services that are tailored to meet each family’s unique needs.
  • Hope Loves Company (HLC) provides support to children and young adults affected by ALS, including in-person camps in various states across the country.
  • I AM ALS offers advocacy opportunities, virtual support groups, and ongoing emotional support and logistical guidance for families impacted by ALS.
  • The LiveLikeLou Foundation has volunteers throughout the U.S. and Canada who can help families affected by ALS with tasks in and around the home.
  • Synapticure is a telemedicine healthcare company that provides personalized care and guidance for people living with ALS via video, phone, and email.
  • Team Gleason offers grants that help pay for innovative technology and equipment for people living with ALS. ​

Veterans Benefits

If you are a U.S. military Veteran who has been diagnosed with ALS, you should qualify for substantial service-connected benefits through the VA. The Paralyzed Veterans of America (PVA) is a nonprofit organization that can help Veterans and their families understand and apply for benefits.​
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Additional Resources

Our full resource list also includes information for international ALS/MND organizations, research and treatment, children and youth support, health care and Insurance, and online resources.