Below you will find local and national resources that can help support people living with ALS and their families.
Local ALS Support Services in Pennsylvania
We highly recommend connecting with an ALS nonprofit organization that serves your area. These organizations can answer your questions, provide individualized support, connect you to resources, and much more—free of charge.
ALS Hope Foundation
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ALS Hope Foundation’s experienced team provides multidisciplinary care and support services through its MDA/ALS Center of Hope at Temple University in Philadelphia. The Foundation also conducts lab research, hosts clinical trials, and supports a variety of national and international initiatives.
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Free services include:
- Equipment loan program
- Assistive technology program
- Home visits
- Virtual support groups
- Educational resources and events
- Clinical trial education, enrollment, and coordination
Service Area: Pennsylvania, New Jersey, Delaware, Maryland
Website: www.alshf.org
Phone: (215) 568-2426
Email: [email protected]
Website: www.alshf.org
Phone: (215) 568-2426
Email: [email protected]
ALS United Mid-Atlantic
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ALS United Mid-Atlantic provides comprehensive care and support to individuals and families affected by ALS. Its compassionate team provides tangible assistance and guidance to ensure you have the services and equipment that you need.
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Free services include:
- Personalized support with a nurse, social worker, and assistive technology specialist
- Home care grants
- Equipment loan program
- Transportation program
- Ramping and stair glides
- Assistive technology
- General and specialized support groups
- Resources for military veterans
- ALS clinic coordination
- Educational resources and webinars
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Service Area: Eastern half of Pennsylvania, Central and Southern New Jersey, and Delaware (see map)
Website: www.alsmidatlantic.org Phone: (215) 643-5434 – Select option 3 Email: [email protected] |
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The ALS Association
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The ALS Association offers a variety of programs and services that help support people living with ALS and their families. The ALS Association provides advocacy leadership, research and clinical trial information, ALS clinic referrals, support groups, Medicare/Insurance Navigation services, a Virtual Home Modification and Safety Assessment program, and My ALS Journey, an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease. Visit their website or call to learn more about services in your area.
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Service Area: 31 counties in western and central Pennsylvania including: Allegheny, Armstrong, Beaver, Bedford, Blair, Butler, Cambria, Cameron, Centre, Clarion, Clearfield, Crawford, Elk, Erie, Fayette, Forest, Franklin, Fulton, Greene, Huntingdon, Indiana, Jefferson, Lawrence, McKean, Mercer, Potter, Somerset, Venango, Warren, Washington, and Westmoreland
Website: Visit
Phone: (412) 821-3254
Email: [email protected]
Website: Visit
Phone: (412) 821-3254
Email: [email protected]
National ALS Support and Services
The following organizations can provide support, material assistance, advocacy opportunities, and more for families affected by ALS.
- Compassionate Care ALS (CCALS) offers an innovative and holistic range of in-person and virtual services that are tailored to meet each family’s unique needs.
- Hope Loves Company (HLC) provides support to children and young adults affected by ALS, including in-person camps in various states across the country.
- I AM ALS offers advocacy opportunities, virtual support groups, and ongoing emotional support and logistical guidance for families impacted by ALS.
- The LiveLikeLou Foundation has volunteers throughout the U.S. and Canada who can help families affected by ALS with tasks in and around the home.
- Synapticure is a telemedicine healthcare company that provides personalized care and guidance for people living with ALS via video, phone, and email.
- Team Gleason offers grants that help pay for innovative technology and equipment for people living with ALS.
Veterans Benefits
If you are a U.S. military Veteran who has been diagnosed with ALS, you should qualify for substantial service-connected benefits through the VA. The Paralyzed Veterans of America (PVA) is a nonprofit organization that can help Veterans and their families understand and apply for benefits.
Additional Resources
Our full resource list also includes information for international ALS/MND organizations, research and treatment, children and youth support, health care and Insurance, and online resources.
