Below you will find local and national resources that can help support people living with ALS and their families.

Local ALS Support Services in North Carolina

We highly recommend connecting with an ALS nonprofit organization that serves your area. These organizations can answer your questions, provide individualized support, connect you to resources, and much more—free of charge.

ALS United North Carolina

ALS United North Carolina provides comprehensive care, support, education, and guidance to individuals and families affected by ALS. Care Services Coordinators attend ALS clinics, offer phone consultations, teach families how to be proactive, and more.
Free services include:

  • ALS clinic referrals and coordination
  • Equipment loan program
  • Support groups for people living with ALS, families, and loved ones
  • Caregiver support
  • Grant program to assist families with expenses not covered by insurance

Service Area: North Carolina
Website: www.alsnc.org 
Phone: (919) 755-9001 or (877) 568-4347
Email: [email protected]

Joe Martin ALS Foundation

The Joe Martin ALS Foundation empowers families as they face the challenge of living actively with ALS by providing home care and other services at no cost.
Free services include:

  • Respite care
  • Home assessments
  • Range of motion therapy
  • Mobility safety
  • Caregiver training and workshops
  • Wheelchair-accessible transportation
  • Assistive technology support
  • Assistance with activities of daily living like dressing, grooming, and transferring
  • Assistance with meals, errands, and home projects
  • Overnight camp for children whose lives have been affected by ALS

Service Area: In-home care is available in the Piedmont Triad and the greater Charlotte metro area (North and South Carolina). Virtual services, such as caregiver workshops and home assessments, are available for people living anywhere.
Website: www.joemartinalsfoundation.org
Phone: (704) 332-1929
Email: [email protected]

ALS Clinics Directory

Attending an ALS clinic can improve your quality of life and help you live longer. Search our comprehensive directory of clinics in the U.S.

National ALS Support and Services

The following organizations can provide support, material assistance, advocacy opportunities, and more for families affected by ALS.

  • The ALS Association offers Medicare and insurance navigation services, a Virtual Home Modification and Safety Assessment program, online educational resources, and more.
  • Compassionate Care ALS (CCALS) offers an innovative and holistic range of in-person and virtual services that are tailored to meet each family’s unique needs.
  • Hope Loves Company (HLC) provides support to children and young adults affected by ALS, including in-person camps in various states across the country.
  • I AM ALS offers advocacy opportunities, virtual support groups, and ongoing emotional support and logistical guidance for families impacted by ALS.
  • The LiveLikeLou Foundation has volunteers throughout the U.S. and Canada who can help families affected by ALS with tasks in and around the home.
  • Synapticure is a telemedicine healthcare company that provides personalized care and guidance for people living with ALS via video, phone, and email.
  • Team Gleason offers grants that help pay for innovative technology and equipment for people living with ALS. ​

Veterans Benefits

If you are a U.S. military Veteran who has been diagnosed with ALS, you should qualify for substantial service-connected benefits through the VA. The Paralyzed Veterans of America (PVA) is a nonprofit organization that can help Veterans and their families understand and apply for benefits.​
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Additional Resources

Our full resource list also includes information for international ALS/MND organizations, research and treatment, children and youth support, health care and Insurance, and online resources.