Below you will find local and national resources that can help support people living with ALS and their families.
Local ALS Support Services in New Jersey
We highly recommend connecting with an ALS nonprofit organization that serves your area. These organizations can answer your questions, provide individualized support, connect you to resources, and much more—free of charge.
ALS Hope Foundation
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ALS Hope Foundation’s experienced team provides multidisciplinary care and support services through its MDA/ALS Center of Hope at Temple University in Philadelphia. The Foundation also conducts lab research, hosts clinical trials, and supports a variety of national and international initiatives.
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Free services include:
- Equipment loan program
- Assistive technology program
- Home visits
- Virtual support groups
- Educational resources and events
- Clinical trial education, enrollment, and coordination
Service Area: Pennsylvania, New Jersey, Delaware, Maryland
Website: www.alshf.org
Phone: (215) 568-2426
Email: [email protected]
Website: www.alshf.org
Phone: (215) 568-2426
Email: [email protected]
ALS United Greater New York
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ALS United Greater New York provides on-the-ground comprehensive care and support to individuals and families affected by ALS.
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Free services include:
Service Area: New York City, Long Island, Westchester County, Hudson Valley, and Northern and Central New Jersey
Website: www.als-ny.org
Phone: (212) 619-1400
Email: [email protected]
- Care management
- Home visits
- Equipment loan program
- Accessibility guidance and support
- ALS clinic coordination
- Transportation to and from clinic appointments
- Virtual support groups
- Educational webinars
- Caregiver support
- Financial grants
- Bereavement support
Service Area: New York City, Long Island, Westchester County, Hudson Valley, and Northern and Central New Jersey
Website: www.als-ny.org
Phone: (212) 619-1400
Email: [email protected]
ALS United Mid-Atlantic
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ALS United Mid-Atlantic provides comprehensive care and support to individuals and families affected by ALS. Its compassionate team provides tangible assistance and guidance to ensure you have the services and equipment that you need.
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Free services include:
- Personalized support with a nurse, social worker, and assistive technology specialist
- Home care grants
- Equipment loan program
- Transportation program
- Ramping and stair glides
- Assistive technology
- General and specialized support groups
- Resources for military veterans
- ALS clinic coordination
- Educational resources and webinars
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Service Area: Eastern half of Pennsylvania, Central and Southern New Jersey, and Delaware (see map)
Website: www.alsmidatlantic.org Phone: (215) 643-5434 – Select option 3 Email: [email protected] |
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Compassionate Care ALS, Inc. (CCALS)
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Since 1998, CCALS has offered an innovative and holistic range of services that are tailored to meet each family’s unique needs. CCALS’ expertise, support, and state-of-the-art equipment can transform the daily lives of individuals, caregivers, and families living with ALS.
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Free services include:
Service Area: CCALS is based in Massachusetts and also provides support services in New Hampshire, New York, New Jersey, Connecticut, Florida, California, and Colorado.
Website: www.ccals.org
Phone: (508) 444-6775
Email: [email protected]
- Zoom and home visits
- Educational gatherings
- Speaker series
- Cultivating compassion education series
- Augmentative communication support
- Medicare assistance
- Support and guidance with end-of-life issues
- Heald Center Education, Retreat, and Respite
- Transportation to clinical trials and medical appointments (Massachusetts only)
- Durable medical equipment
Service Area: CCALS is based in Massachusetts and also provides support services in New Hampshire, New York, New Jersey, Connecticut, Florida, California, and Colorado.
Website: www.ccals.org
Phone: (508) 444-6775
Email: [email protected]
MAC Angels Foundation
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MAC Angels Foundation enhances quality of life for ALS patients, family members, and caregivers by providing the compassion, education, and unique resources needed to manage the devastating effects of this disease.
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Free services include:
Service Area: New York City, Long Island, Westchester/Hudson Valley, NY; Fairfield County, CT; Northern & Central New Jersey
Website: www.macangels.org
Phone: (914) 637-7010
Email: [email protected]
- Ongoing practical guidance and emotional support
- Home visits
- Informed dialogue on the impact of disease progression
- Consultation with a licensed social worker and/or nurse to help families navigate the healthcare system
- Assistance creating personal and professional support systems
- Virtual or in-person advocacy with healthcare providers
- Assistance securing durable medical equipment
- Bi-weekly caregiver support group
- Education on and assistance with completing advance healthcare directives
Service Area: New York City, Long Island, Westchester/Hudson Valley, NY; Fairfield County, CT; Northern & Central New Jersey
Website: www.macangels.org
Phone: (914) 637-7010
Email: [email protected]
Hope Loves Company
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Hope Loves Company (HLC) is a nonprofit organization dedicated to providing educational and emotional support to children and young adults affected by ALS. HLC hosts in-person camps and offers a variety of other programs—all at no cost to families.
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Free services include:
Service area: Hope Loves Company is based in New Jersey and hosts camps in New Jersey as well as in other states.
Website: www.hopelovescompany.org
Phone: (609) 730-1144
Email: [email protected]
- In-person three-day camps for children and young adults
- Travel assistance reimbursement to all in-person programs
- Virtual hangouts
- Hugs of Hope care packages
- Scholarships
- Parent meetups
- Young adult retreats
Service area: Hope Loves Company is based in New Jersey and hosts camps in New Jersey as well as in other states.
Website: www.hopelovescompany.org
Phone: (609) 730-1144
Email: [email protected]
Joan Dancy and PALS Foundation
Service Area: Central New Jersey (Monmouth, Ocean, and Middlesex counties)
Website: www.joandancyandpals.org
Phone: (732) 450-2677
Email: [email protected]
Website: www.joandancyandpals.org
Phone: (732) 450-2677
Email: [email protected]
National ALS Support and Services
The following organizations can provide support, material assistance, advocacy opportunities, and more for families affected by ALS.
- The ALS Association offers Medicare and insurance navigation services, a Virtual Home Modification and Safety Assessment program, online educational resources, and more.
- I AM ALS offers advocacy opportunities, virtual support groups, and ongoing emotional support and logistical guidance for families impacted by ALS.
- The LiveLikeLou Foundation has volunteers throughout the U.S. and Canada who can help families affected by ALS with tasks in and around the home.
- Synapticure is a telemedicine healthcare company that provides personalized care and guidance for people living with ALS via video, phone, and email.
- Team Gleason offers grants that help pay for innovative technology and equipment for people living with ALS.
Veterans Benefits
If you are a U.S. military Veteran who has been diagnosed with ALS, you should qualify for substantial service-connected benefits through the VA. The Paralyzed Veterans of America (PVA) is a nonprofit organization that can help Veterans and their families understand and apply for benefits.
Additional Resources
Our full resource list also includes information for international ALS/MND organizations, research and treatment, children and youth support, health care and Insurance, and online resources.
