Light The Way’s free genetic counseling and testing research study has now ended. You can still join the platform to learn more about genetic ALS/MND and access resources that can help you and your loved ones understand ALS/MND.
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Light The Way provides individuals and families with access to genetic education and guidance on next steps, including peer support, trials, therapies, and family planning. The platform is for people who are 18 years or older; have a diagnosis of ALS, a family history of ALS, or symptoms of ALS; are caring for someone experiencing ALS/MND symptoms; and are based in the United States.
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Light The Way can offer:
The education modules are designed to provide you with a better understanding of the genetic risk factors associated with ALS/MND, the process and implications of genetics testing, the benefits of genetic counseling, and what to expect throughout the testing process. The modules also address the potential impact on areas such as medical insurance, so you can make an informed decision about whether genetic testing is right for you.
Light The Way will also provide useful resources and notifications about any new opportunities. There are multiple ways people living with ALS can participate in research, from observational studies documenting the disease progression to clinical trials testing efficacy of new treatments. Family members at risk of genetic ALS/MND can also join multiple research opportunities.
- Signposting to safe, supportive communities
- Access to no-cost educational information developed by healthcare professionals
- The ability to upload your prior genetic testing results for future reference
- Updates on the latest treatments and research opportunities
The education modules are designed to provide you with a better understanding of the genetic risk factors associated with ALS/MND, the process and implications of genetics testing, the benefits of genetic counseling, and what to expect throughout the testing process. The modules also address the potential impact on areas such as medical insurance, so you can make an informed decision about whether genetic testing is right for you.
Light The Way will also provide useful resources and notifications about any new opportunities. There are multiple ways people living with ALS can participate in research, from observational studies documenting the disease progression to clinical trials testing efficacy of new treatments. Family members at risk of genetic ALS/MND can also join multiple research opportunities.
About Light The Way and Sano Genetics
Light The Way was created by Sano Genetics, an established platform that provides genetic testing for multiple diseases. A team of scientists, ethicists, genetic counselors, people living with ALS, family members, and advocates co-designed Light The Way according to current best practices.
Your ALS Guide carefully selects and shares some services provided by trusted partners. They provide monetary support, which enables us to develop more educational content for you.
