The ALS Association
If you only do one thing, contact your local ALS Association chapter. They will work with you on an individual basis, guide you through the process, and connect you to other resources. Their services are free and they will also help save you money through their equipment loan closet.
Muscular Dystrophy Association (MDA)
MDA supports individuals and families affected by muscular dystrophy, ALS, and related life-threatening diseases. Though ALS is not their sole focus, MDA provides information, support services, and clinics for people affected by ALS.