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Unlike testing for many other diseases, there is no one definitive test that can diagnose ALS for those who do not have familial ALS, which is genetic.
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Diagnosing ALS involves ruling out other possibilities through a process of elimination. This can be complicated, and there is the possibility of misdiagnosis.
After being diagnosed with such a serious illness, it is reasonable to seek a second opinion. Because an ALS diagnosis will affect the way you begin to plan for your future, you will want to make sure that you have minimized any doubts about what is causing your symptoms. |
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ALS is a rare disease, and not every neurologist specializes in ALS. It is very important, whenever possible, to find a neurologist in your area who has neuromuscular training and is familiar with the disease and the diagnostic process. We recommend using our ALS Clinics Directory to find a neurologist at an ALS clinic near you. Another good way to find a specialist is to contact your local ALS organization to ask for recommendations.
When you schedule your appointment, explain that you are seeking a second opinion for an ALS diagnosis. This may help you get an appointment quickly. Before your appointment, make sure the neurologist has your initial medical records and test results. Write down any questions you have and ask a loved one to accompany you to provide support and help take notes.
If your second opinion diagnosis confirms ALS, we suggest making an appointment at an ALS clinic and contacting your local ALS organization. The sooner you get connected with a team of experts, the more support you will have, and the better your quality of life will be.
When you schedule your appointment, explain that you are seeking a second opinion for an ALS diagnosis. This may help you get an appointment quickly. Before your appointment, make sure the neurologist has your initial medical records and test results. Write down any questions you have and ask a loved one to accompany you to provide support and help take notes.
If your second opinion diagnosis confirms ALS, we suggest making an appointment at an ALS clinic and contacting your local ALS organization. The sooner you get connected with a team of experts, the more support you will have, and the better your quality of life will be.
