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  • Home
  • Get Started
    • Learn About ALS
    • Newly Diagnosed
    • People with ALS
    • Veterans with ALS
    • Caregivers
    • Paid Caregivers
  • Planning
    • Health Insurance
    • Employment
    • Self-Care
    • Medical Decisions
    • Research and Clinical Trials
    • Care Options
    • Advance Directives
    • Legacy
    • Transportation
    • Home Modifications
    • Travel
  • Guides
    • Home & Daily Living
    • Newly Diagnosed
    • Respiratory
    • Power Wheelchairs
    • Communication
    • Braces
  • Equipment
    • ALS Equipment Guide
    • Mobility
    • Transfer Devices
    • Ramps and Lifts
    • Toileting Devices
    • Tub and Shower Devices
    • Braces and Splints
    • Grooming Devices
    • Dressing Aids
    • Eating Devices
    • Drinking Devices
    • Sleeping and Beds
    • ALS Smart Home Devices
    • Leisure Devices
    • ALS Equipment Loan Closets
  • Resources
    • ALS Clinics
    • Support Services
    • Support Groups
    • For Professionals
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    • Get Involved
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The National ALS Registry


You can join the fight against ALS and help advance research by filling out these short surveys from home. By answering questions about your work history, environmental exposures, military service, and other topics, you can help ALS researchers:

  • Identify potential causes of ALS
  • Better understand the disease
  • Identify promising areas of new research
  • Move closer to treatments and a cure

Each online survey takes about five minutes to complete. You don’t need to fill out every survey, and you don’t need to fill them out all at once. You can take these surveys with the help of a family member or friend, if needed.

To participate in the National ALS Registry, you must be a U.S. citizen or legal resident who has been diagnosed with ALS. Your name and personal information will not be shared with researchers. You may also provide biological samples like hair, saliva, and blood for research.

When you enroll in the Registry, you can request to receive information about clinical trials and research studies that are currently enrolling.
LEARN MORE

The National ALS Registry

Thanks to advocacy efforts by the ALS community, the National ALS Registry was established in 2010. It is funded by the U.S. Congress and operated through the Centers for Disease Control.
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